延缓高级疗法的衰退：是时候变得明智了。
Winding Back the Clock on Advanced Therapies: It's Time to Get Smart.
机构信息
Parkinson's Disease Research Clinic, Macquarie Medical School, Faculty of Medicine, Health and Human Sciences, Macquarie University, Sydney, Australia.
Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.
出版信息
J Parkinsons Dis. 2024;14(7):1527-1530. doi: 10.3233/JPD-240193.
Our language affects patients' perceptions of therapies. In Parkinson's disease, emergent response fluctuations and dyskinesias typically trigger conversations around commencing an "Advanced Therapy" which carries notions of Advanced Disease. The patient, resolute in their commitment to fighting the disease, is misled. Chasing reassurance that their disease has not yet progressed considerably; they may therefore resist a potentially life-changing therapy. Instead, we should offer a "Smart Therapy". This term more accurately and positively describes therapies on offer that stabilize response fluctuations and improve quality of life, without a focus on the negative connotations of progression to more advanced disease.
我们的语言会影响患者对治疗方法的看法。在帕金森病中，出现的反应波动和运动障碍通常会引发关于开始使用“高级疗法”的讨论，而这种疗法带有疾病进展的概念。患者坚决与疾病作斗争，却被误导了。他们寻求的是疾病尚未显著进展的保证，因此可能会抵制一种可能改变生活的治疗方法。相反，我们应该提供一种“智能疗法”。这个术语更准确、更积极地描述了提供的稳定反应波动和改善生活质量的治疗方法，而不是关注疾病进展到更高级阶段的负面含义。
Zotero 插件