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跨越障碍:应对疫情期间残疾人面临的挑战与机遇

Beyond Barriers: Addressing Challenges and Opportunities of People with Disability During the Pandemic.

作者信息

Aggarwal Sumit, Tabassum Heena, Agarwal Pragati, Grover Ashoo, Singh Ravinder

机构信息

Department of Descriptive Research, Indian Council of Medical Research, Ansari Nagar, New Delhi, India.

Non-Communicable Diseases, Indian Council of Medical Research, Ansari Nagar, New Delhi, India.

出版信息

Indian J Community Med. 2024 Jul-Aug;49(4):579-587. doi: 10.4103/ijcm.ijcm_49_24. Epub 2024 Jul 9.

DOI:10.4103/ijcm.ijcm_49_24
PMID:39291115
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11404413/
Abstract

People with disabilities often experience worse health outcomes than ordinary people because of multiple barriers to accessing healthcare. These inequalities are particularly exposed during the pandemic, indicating an urgent need to strengthen health systems, so that they are inclusive and responsive to the needs of these people during crises. These people are particularly affected by changes in routine services because of diversion of healthcare staff and facilities to respond to the pandemic, e.g., rehabilitation and medications. The combination of these factors substantially imparts negative impacts on their functioning and well-being. Health services research can help address the challenges of maintaining continuity of care during crises as well as addressing systematic inequalities in the health sector that marginalize people with disabilities even during noncrisis times. Therefore, research is needed to understand the health service design and to identify strategies to maximize active participation from this population.

摘要

由于在获取医疗保健方面存在多重障碍,残疾人的健康状况往往比普通人更差。这些不平等现象在疫情期间尤为凸显,这表明迫切需要加强卫生系统,使其具有包容性,并在危机期间能够满足这些人的需求。由于医护人员和设施被调去应对疫情,常规服务发生变化,这些人受到的影响尤为严重,例如康复服务和药物供应。这些因素共同对他们的功能和福祉产生了重大负面影响。卫生服务研究有助于应对危机期间维持医疗连续性的挑战,以及解决卫生部门中即使在非危机时期也将残疾人边缘化的系统性不平等问题。因此,需要开展研究以了解卫生服务设计,并确定能使这一人群最大限度地积极参与的策略。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1415/11404413/d77de6ed1fdf/IJCM-49-579-g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1415/11404413/95793ea4e484/IJCM-49-579-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1415/11404413/2b4746cca162/IJCM-49-579-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1415/11404413/8b42fb309de2/IJCM-49-579-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1415/11404413/d77de6ed1fdf/IJCM-49-579-g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1415/11404413/95793ea4e484/IJCM-49-579-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1415/11404413/2b4746cca162/IJCM-49-579-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1415/11404413/8b42fb309de2/IJCM-49-579-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1415/11404413/d77de6ed1fdf/IJCM-49-579-g004.jpg

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本文引用的文献

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Telerehabilitation for People With Physical Disabilities and Movement Impairment: A Survey of United Kingdom Practitioners.针对身体残疾和运动障碍患者的远程康复:英国从业者调查
JMIRx Med. 2022 Jan 3;3(1):e30516. doi: 10.2196/30516.
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Disabled people's experiences accessing healthcare services during the COVID-19 pandemic: a scoping review.残疾人在 COVID-19 大流行期间获得医疗服务的体验:范围综述。
BMC Health Serv Res. 2023 Apr 6;23(1):346. doi: 10.1186/s12913-023-09336-4.
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The impact of COVID-19 pandemic on emotional and behavioral problems of children with autism spectrum disorder and developmental delay aged 1-6 years in China.
新冠疫情对中国1至6岁自闭症谱系障碍及发育迟缓儿童情绪和行为问题的影响
Front Psychiatry. 2023 Feb 24;14:1134396. doi: 10.3389/fpsyt.2023.1134396. eCollection 2023.
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Impact of the COVID-19 pandemic on people with disabilities and implications for health services research.2019冠状病毒病大流行对残疾人的影响及对卫生服务研究的启示
J Health Serv Res Policy. 2023 Apr;28(2):77-79. doi: 10.1177/13558196231160047. Epub 2023 Feb 23.
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Financial hardship and mental health conditions in people with underlying health conditions during the COVID-19 pandemic in Bangladesh.孟加拉国新冠疫情期间有基础疾病人群的经济困难与心理健康状况
Heliyon. 2022 Sep;8(9):e10499. doi: 10.1016/j.heliyon.2022.e10499. Epub 2022 Aug 31.
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Global Challenges to Public Health Care Systems during the COVID-19 Pandemic: A Review of Pandemic Measures and Problems.新冠疫情期间全球公共卫生保健系统面临的挑战:疫情应对措施与问题综述
J Pers Med. 2022 Aug 7;12(8):1295. doi: 10.3390/jpm12081295.
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Social Stigma of Patients Suffering from COVID-19: Challenges for Health Care System.新冠肺炎患者的社会污名化:医疗保健系统面临的挑战
Healthcare (Basel). 2022 Feb 2;10(2):292. doi: 10.3390/healthcare10020292.
8
Children and Adolescents with Disabilities and Exposure to Disasters, Terrorism, and the COVID-19 Pandemic: a Scoping Review.残疾儿童和青少年与灾害、恐怖主义和 COVID-19 大流行的暴露:范围综述。
Curr Psychiatry Rep. 2021 Oct 13;23(12):80. doi: 10.1007/s11920-021-01295-z.
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