Jackson Jessica Eve, Moreton Joshua, Barnett Nicola, Hurst Matthew
Associate Professor of Babies, Children and Young People's Health, School of Health Sciences, The University of Nottingham, Queen's Medical Centre, Nottingham.
Researcher, College of Health, Psychology and Social Care, University of Derby, Derby, UK.
J Res Nurs. 2024 Aug;29(4-5):321-331. doi: 10.1177/17449871241246963. Epub 2024 Aug 8.
The methodologies for clinical research trials are evolving to greater usage of social media platforms, providing opportunities to incorporate smart technologies in their delivery. Research Nurses should consider how they can utilise platforms for public engagement in trials.
To explore the experiences of social media platforms and clinical research trials in a healthy population group, to gain insight into how clinical researchers can utilise these platforms professionally and ethically.
Using a critical realist qualitative focus group design with template analysis, we recruited 16 healthy members of the public aged 18-75 years. The data expands upon their thoughts and behaviours regarding social media platforms with their understanding of clinical research.
Three main themes along with their specific subthemes (1) Design: Patient and Public Involvement (Subtheme: Understanding of clinical research, Diversity of social media users), (2) Implementation: Recruitment to active studies, (Subtheme: Motivators for volunteering, Trustworthy), (3) Dissemination: Impact and Awareness of Results, (Subtheme: Information overload, Motivations for users to share information).
This study has highlighted the need to consider the way different population groups use social media platforms and the information they share when looking to engage them in clinical research trials.
临床试验的方法正在不断发展，越来越多地使用社交媒体平台，这为在试验实施过程中融入智能技术提供了机会。研究护士应考虑如何利用这些平台促进公众参与试验。
探讨健康人群对社交媒体平台和临床试验的体验，以深入了解临床研究人员如何专业且合乎道德地利用这些平台。
采用批判性现实主义定性焦点小组设计并进行模板分析，我们招募了16名年龄在18至75岁之间的健康公众成员。数据围绕他们对社交媒体平台的想法和行为以及对临床研究的理解展开。
出现了三个主要主题及其具体子主题：（1）设计：患者和公众参与（子主题：对临床研究的理解、社交媒体用户的多样性），（2）实施：招募参与现行研究（子主题：志愿参与的动机、可信度），（3）传播：结果的影响和认知（子主题：信息过载、用户分享信息的动机）。
本研究强调，在寻求让不同人群参与临床试验时，需要考虑他们使用社交媒体平台的方式以及他们分享的信息。
