早期姑息治疗可减轻先天性心脏病新生儿父母的压力：“婴儿、依恋、舒适干预”的验证。
Early palliative care reduces stress in parents of neonates with congenital heart disease: validation of the "Baby, Attachment, Comfort Interventions".
机构信息
Department of Pediatrics, Columbia University Irving Medical Center/NewYork-Presbyterian, New York, NY, USA.
Children's Hospital of Philadelphia, Division of Neonatology, Philadelphia, PA, USA.
出版信息
J Perinatol. 2019 Dec;39(12):1640-1647. doi: 10.1038/s41372-019-0490-y. Epub 2019 Sep 5.
OBJECTIVE
To test our hypothesis that an innovative method of early palliative care called "Baby, Attachment, Comfort Interventions" reduces psychological distress in parents of neonates with congenital heart disease.
STUDY DESIGN
Prospective cohort study of parents of neonates with congenital heart disease. Distress was evaluated at admission and discharge using Neonatal Unit Parental Stressor Scale and Depression Anxiety Stress Index-21. Control parents received standard of care. Intervention parents received interdisciplinary interventions aimed at improving neonatal comfort and parenting experience.
RESULTS
Seventy-seven parents participated. Stress decreased in the intervention group (26 parents) but not in the control group (51 parents). There was no decrease in anxiety or depression in either group.
CONCLUSION
Early palliative care reduces stress in parents of neonates with congenital heart disease. Further work is needed to address depression/anxiety in this group of high-risk parents.
目的
验证我们的假设，即一种名为“婴儿、依恋、舒适干预”的创新型早期姑息治疗方法可减轻患有先天性心脏病的新生儿父母的心理困扰。
研究设计
对患有先天性心脏病的新生儿父母进行前瞻性队列研究。使用新生儿单位父母压力量表和抑郁焦虑压力量表-21 在入院和出院时评估父母的压力。对照组父母接受标准护理。干预组父母接受旨在改善新生儿舒适度和育儿体验的跨学科干预。
结果
77 名父母参与。干预组（26 名父母）的压力下降，但对照组（51 名父母）的压力没有下降。两组的焦虑或抑郁均无下降。
结论
早期姑息治疗可减轻患有先天性心脏病的新生儿父母的压力。需要进一步研究来解决这组高危父母的抑郁/焦虑问题。
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