Biswas Jheelam, Mroy Wai Wai, Islam Nashid, Afsar Nahid, Kashmeeri Mastura, Banik Palash Chandra
Bangabandhu Sheikh Mujib Medical University (BSMMU), Dhaka, Bangladesh
Dhaka Medical College Hospital (DMCH), Dhaka, Bangladesh.
BMJ Support Palliat Care. 2024 Dec 25;15(1):130-133. doi: 10.1136/spcare-2024-004997.
This study aims to provide an in-depth exploration of everyday spiritual concerns of patients with advanced cancer seeking palliative care in Bangladesh, and assess their spiritual well-being (SWB).
This study was conducted among 163 patients with advanced cancer from three tertiary care hospitals in Bangladesh. It was divided into two parts: a quantitative segment that assessed the SWB of the participants using the EORTC QLQ SWB32, and a qualitative segment that explored their spiritual history.
Spirituality was commonly interpreted and understood synonymously with religion by all participants, and their sense of life's meaning centred on their families and friends. The lack of support from religious organisations led to feelings of isolation and disconnection from spiritual communities. Highest scores in SWB were observed in Relationships with God and Someone/Something Greater Scales. The lowest score was observed for Existential fulfilment. Patients expressed a desire for their palliative care team to address their spiritual concerns, regardless of their training in this area.
Spirituality is a deeply personal aspect of the human experience. Understanding and respecting these beliefs can empower palliative care professionals to deliver culturally sensitive care to their patients, irrespective of their level of training.
本研究旨在深入探究孟加拉国寻求姑息治疗的晚期癌症患者的日常精神关切,并评估他们的精神幸福感(SWB)。
本研究在孟加拉国三家三级护理医院的163名晚期癌症患者中进行。研究分为两个部分:定量部分使用欧洲癌症研究与治疗组织(EORTC)的QLQ SWB32评估参与者的精神幸福感,定性部分探究他们的精神历程。
所有参与者通常将灵性与宗教同义理解,他们的生命意义感以家人和朋友为中心。宗教组织缺乏支持导致他们感到与精神社区隔离和脱节。在与上帝及与更伟大的某人/某物的关系量表中,精神幸福感得分最高。在存在意义实现量表中得分最低。患者表示希望他们的姑息治疗团队解决他们的精神关切,无论团队成员在该领域是否接受过培训。
灵性是人类体验中非常个人化的一个方面。理解和尊重这些信仰能够使姑息治疗专业人员为患者提供具有文化敏感性的护理,无论他们的培训水平如何。