长期患病者的生活：一种新的西班牙语家庭护理人员评估工具的验证。
Living with long-term conditions: validation of a new instrument for family caregivers in a Spanish-speaking population.
机构信息
Facultad de Enfermería y Podología, Universitat de Valencia, Valencia, Spain.
Faculty of Health Science, Valencian International University, Valencia, Spain.
出版信息
BMJ Open. 2024 Sep 20;14(9):e088773. doi: 10.1136/bmjopen-2024-088773.
INTRODUCTION
Optimising the management of chronicity has been a global challenge for decades. Individuals with long-term conditions (LTCs) and their families live with them for years. Thus, it is necessary to include both of their perspectives in the management and adaptation of the interventions proposed. The psychometric properties of the living with LTCs scale from the perspective of the family caregiver are unknown. The objective of the present study is to describe the psychometric properties of the EC-PC-Fam in a Spanish-speaking population.
METHODS
An observational, cross-sectional study was performed with a retest of part of the sample. The fit of the model was optimised with a factorial analysis, and the psychometric properties were verified.
RESULTS
A sample of 311 caregivers was recruited. Most of them were women (68.2%) and had a mean age of 58.29±9.91 years (range: 32-84 years). The initial version did not obtain acceptable fit scores. To improve the fit, different versions were tested, refining the distribution of the items until optimisation was reached in V.10 (19 items). Cronbach's alpha was 0.81 for the scale as a whole. The intraclass correlation coefficient was 0.77. The EC-PC-Fam scale is strongly and inversely correlated with a scale that measures the burden of the caregiver (r=-0.46), and moderately related to the health-related quality of life (r=0.373) and social support (r=0.38).
CONCLUSIONS
The EC-PC-Fam scale from a family perspective is defined as a promising tool for promoting personalised care and for optimising the management of LTCs, and a new approach that includes family caregivers is proposed for clinical practice. The scale is an instrument with a moderate fit and optimum psychometric properties to measure living with LTCs from the perspective of a family caregiver. New validation studies are recommended to verify the fit of the proposed factorial solution.
简介
几十年来，优化慢性病管理一直是全球面临的挑战。患有长期疾病（LTC）的个体及其家人与之共同生活多年。因此，有必要在管理和适应所提出的干预措施时纳入他们双方的观点。从家庭照顾者的角度来看，LTC 量表的心理计量学特性尚不清楚。本研究的目的是描述西班牙语人群中 EC-PC-Fam 的心理计量学特性。
方法
进行了一项观察性、横断面研究，对部分样本进行了复测。通过因子分析优化模型拟合，并验证心理计量学特性。
结果
共招募了 311 名照顾者。他们大多数是女性（68.2%），平均年龄为 58.29±9.91 岁（范围：32-84 岁）。初始版本未获得可接受的拟合分数。为了提高拟合度，测试了不同版本，对项目的分布进行了细化，直到在 V.10（19 个项目）中达到最佳优化。整个量表的克朗巴赫α系数为 0.81。组内相关系数为 0.77。EC-PC-Fam 量表与衡量照顾者负担的量表呈强烈负相关（r=-0.46），与健康相关生活质量（r=0.373）和社会支持（r=0.38）中度相关。
结论
从家庭角度来看，EC-PC-Fam 量表是一种有前途的工具，可用于促进个性化护理和优化 LTC 的管理，并为临床实践提出了一种新的包含家庭照顾者的方法。该量表是一种中等拟合度和最佳心理计量学特性的工具，用于衡量家庭照顾者视角下的 LTC 生活。建议开展新的验证研究，以验证所提出的因子解决方案的拟合度。
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