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将长期疾病生活量表应用于家庭照顾者的方法学建议。

Methodological Proposal for the Adaptation of the Living with Long-Term Conditions Scale to the Family Caregiver.

作者信息

Marín-Maicas Patricia, Portillo Mari Carmen, Corchón Silvia, Ambrosio Leire

机构信息

Faculty of Health Science, Valencian International University, 46002 Valencia, Spain.

Faculty of Nursing and Chiropody, University of Valencia, 46010 Valencia, Spain.

出版信息

Nurs Rep. 2024 Feb 27;14(1):532-544. doi: 10.3390/nursrep14010041.

Abstract

(1) Background: Living with long-term conditions affects both patients and family caregivers. To obtain a more complete overview of this phenomenon, a measurement instrument is needed that includes both perspectives. The aim is to adapt a scale to family caregivers of individuals with long-term conditions. (2) Methods: A methodological proposal is presented that illustrates the adaptation of the EC-PC scale to the family caregiver. Three phases are proposed: adaptation of the items, panel of experts, and pre-test. (3) Results: In the adaptation phase, the items from the original EC-PC were modified to adapt them to the family caregiver, and new items were added associated with the differences in living with LTC from the perspective of family caregivers. In the panel of experts phase, a universal agreement was reached related to the clarity, relevance, and essentiality of the items included. In the pre-test phase, the content of the scale was verified quantitatively and qualitatively. (4) Conclusions: The content of the items of version 5 of the EC-PC-Family showed a high index of inter-judge agreement. When a phenomenon affects both patients and their environment, such as living with LTC, it is necessary to include both perspectives in the measurement tools.

摘要

(1) 背景:患有长期疾病对患者及其家庭照顾者都会产生影响。为了更全面地了解这一现象,需要一种能涵盖双方视角的测量工具。目的是对一种量表进行改编,使其适用于患有长期疾病者的家庭照顾者。(2) 方法:提出了一项方法建议,阐述了将欧洲慢性疾病患者照顾者(EC-PC)量表改编应用于家庭照顾者的过程。该过程分为三个阶段:条目改编、专家小组评审和预测试。(3) 结果:在条目改编阶段,对原始EC-PC量表的条目进行了修改,使其适用于家庭照顾者,并从家庭照顾者的角度添加了与长期疾病患者生活差异相关的新条目。在专家小组评审阶段,就所纳入条目的清晰度、相关性和必要性达成了普遍共识。在预测试阶段,对量表内容进行了定量和定性验证。(4) 结论:EC-PC家庭版第5版条目的内容显示出较高的评判者间一致性指数。当一种现象同时影响患者及其环境,如患有长期疾病时,有必要在测量工具中纳入双方视角。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3281/10974583/6680edc8b125/nursrep-14-00041-g001.jpg

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