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弥合差距:社区咨询委员会促进族裔多样化人群参与癌症研究

Bridging the Gap: A Community Advisory Board Promoting Community Engagement in Cancer Research for Ethnically Diverse Populations.

机构信息

Department of Pharmacy, Clinical & Administrative Sciences, College of Pharmacy, The University of Oklahoma Health Sciences, Oklahoma City, OK, USA.

Tobacco Settlement Endowment Trust Health Promotion Research Center, The University of Oklahoma Health Sciences, Oklahoma City, OK, USA.

出版信息

Am J Mens Health. 2024 Sep-Oct;18(5):15579883241280826. doi: 10.1177/15579883241280826.

Abstract

Prostate cancer disproportionately affects Black men in the United States, leading to higher mortality rates and health disparities. In addition, based on historical mistreatment and discrimination and the resulting distrust of the medical system, Black populations are consistently underrepresented in health care-related research. Addressing these challenges requires community-driven approaches integrating diverse perspectives and fostering equitable health outcomes. This article describes the formation and impact of The Multidisciplinary Health Outcomes Research and Economics (MORE) Lab Community Advisory Board (CAB) at The University of Oklahoma Health Sciences. We purposefully recruited Black men with CaP and Black health care professionals to serve on a CAB and advise on ongoing research to address quality of life (QoL) issues in ethnically diverse Black CaP survivors. The CAB seeks to mitigate CaP disparities and improve health equity by empowering Black voices and promoting collaborative research practices. The MORE Lab CAB has successfully provided a venue for community members to contribute to designing a culturally relevant research program to improve the QoL in ethnically diverse Black men with CaP. The CAB has been instrumental in developing research goals and tools, implementing a series of town hall meetings to educate and support Black CaP survivors, and disseminating research findings. In conclusion, CABs are potentially critical in guiding research, enhancing community engagement, and advocating for culturally responsive health interventions.

摘要

前列腺癌在美国不成比例地影响着黑人男性,导致死亡率和健康差距更高。此外,基于历史上的虐待和歧视以及由此产生的对医疗系统的不信任,黑人在与医疗保健相关的研究中一直代表性不足。应对这些挑战需要社区驱动的方法,整合多元化的观点,并促进公平的健康结果。本文描述了俄克拉荷马大学健康科学中心多学科健康结果研究和经济学(MORE)实验室社区咨询委员会(CAB)的形成和影响。我们有意招募患有前列腺癌的黑人男性和黑人医疗保健专业人员担任 CAB 成员,并就正在进行的研究提供建议,以解决不同族裔的黑人前列腺癌幸存者的生活质量(QoL)问题。CAB 旨在通过赋予黑人声音和促进合作研究实践来减轻前列腺癌的差异,并提高健康公平性。MORE 实验室 CAB 成功地为社区成员提供了一个场所,为设计一个与文化相关的研究项目做出贡献,以提高患有前列腺癌的不同族裔黑人男性的生活质量。CAB 对于制定研究目标和工具、实施一系列市政厅会议以教育和支持黑人前列腺癌幸存者以及传播研究结果都非常重要。总之,CAB 在指导研究、增强社区参与和倡导文化响应的健康干预方面具有潜在的重要性。

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African American participation in cancer clinical trials.非裔美国人参与癌症临床试验的情况。
Ecancermedicalscience. 2021 Oct 25;15:1307. doi: 10.3332/ecancer.2021.1307. eCollection 2021.
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Racial disparities in prostate cancer among black men: epidemiology and outcomes.黑人男性前列腺癌的种族差异:流行病学和结局。
Prostate Cancer Prostatic Dis. 2022 Sep;25(3):397-402. doi: 10.1038/s41391-021-00451-z. Epub 2021 Sep 2.

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