Menzies Institute for Medical Research, University of Tasmania, 17 Liverpool St, Hobart, TAS, 7000, Australia.
Centre for Health Economics, Monash University, Caulfield East, Victoria, Australia.
Health Qual Life Outcomes. 2024 Sep 30;22(1):83. doi: 10.1186/s12955-024-02278-3.
Subjective wellbeing has been defined as an individual's personal appraisal of their quality of life. Subjective wellbeing is associated with positive health behaviours and improved coping abilities. This study aimed to investigate the subjective wellbeing of people living with multiple sclerosis (MS), using the novel Personal Wellbeing Index, and make comparisons with the general population.
Cross-sectional data was obtained from the Australian Multiple Sclerosis Longitudinal Study and the How Is Your Life Australian general population study in August-October 2020. Subjective wellbeing was measured as life satisfaction using the Personal Wellbeing Index. This instrument measures life satisfaction globally and in seven life domains, allowing the importance of domain-specific life satisfaction to be explored. Descriptive and multivariable regression analyses were conducted.
One thousand six hundred eighty-three MS and 1,021 general population participants entered the study (mean age 52.4 and 58.6; female 79.9% and 52.4%, respectively). For people living with MS the most important life domains were standard of living and achieving in life. The domain of personal health was more influential for people living with MS (p < 0.01) than the general population. The life domains most susceptible to MS-related disability were personal health, achieving in life, and community connectedness (p < 0.01 for these domains).
Personal health and achieving in life are key domains through which the subjective wellbeing of people living with MS is modified. This study recommends the development of interventions to support healthy perceptions of illness and continued employment as paramount in improving the subjective wellbeing of people living with MS.
主观幸福感已被定义为个体对生活质量的个人评价。主观幸福感与积极的健康行为和提高的应对能力有关。本研究旨在使用新颖的个人幸福感指数(Personal Wellbeing Index)调查多发性硬化症(MS)患者的主观幸福感,并与普通人群进行比较。
2020 年 8 月至 10 月,从澳大利亚多发性硬化症纵向研究(Australian Multiple Sclerosis Longitudinal Study)和澳大利亚一般人群生活满意度研究(How Is Your Life Australian general population study)中获得了横断面数据。使用个人幸福感指数(Personal Wellbeing Index)测量主观幸福感。该工具全面衡量生活满意度,并在七个生活领域衡量生活满意度,从而可以探索特定领域生活满意度的重要性。进行了描述性和多变量回归分析。
共有 1683 名 MS 患者和 1021 名普通人群参与者进入研究(平均年龄分别为 52.4 岁和 58.6 岁;女性分别为 79.9%和 52.4%)。对于 MS 患者,最重要的生活领域是生活水平和实现人生目标。个人健康领域对 MS 患者的影响比普通人群更大(p < 0.01)。与 MS 相关残疾最易受影响的生活领域是个人健康、实现人生目标和社区联系(这些领域的 p < 0.01)。
个人健康和实现人生目标是影响 MS 患者主观幸福感的关键领域。本研究建议制定干预措施,支持健康的疾病认知和持续就业,这对于提高 MS 患者的主观幸福感至关重要。