Parchem Benjamin, Rider G Nic, Quinn Gwendolyn P
Institute for Sexual and Gender Health, Department of Family Medicine and Community Health, University of Minnesota Medical School.
Department of Obstetrics and Gynecology, New York University Grossman School of Medicine.
Clin Pract Pediatr Psychol. 2024 Sep;12(3):358-365. doi: 10.1037/cpp0000502. Epub 2024 Mar 14.
Families or loved ones of adolescents and young adults (AYA) with a poor cancer prognosis who preserved fertility and did not survive treatment may choose to pursue posthumous assisted reproduction (PAR; i.e., use of preserved reproductive material for future family-building attempts). Decisions about PAR may be occurring in the context of grief and bereavement, which is associated with ethical and psychological considerations because grief can complicate a person's capacity for informed decision-making.
Through the use of a five-step ethical decision-making model, the American Psychological Association's Ethical Principles of Psychologists and Code of Conduct, and a blended case example, the ethical and psychological considerations for families of AYA with poor prognosis who pursue PAR is discussed with an ethical analysis.
Ethical and psychological considerations included assessing the potential for harm to involved parties, navigating PAR decision-making with responsibility and honesty, examining the accessibility of PAR, and considering informed consent/assent and autonomy.
Clinical recommendations for supporting families and loved ones exploring PAR in the context of grief were discussed, with considerations for improving clinicians' comfort and competence with PAR, incorporating grief into informed consent conversations, standardizing conversations about PAR, and promoting an interdisciplinary approach to PAR-related decisions.
癌症预后较差的青少年及年轻成人(AYA)在保留生育能力但治疗后未存活的情况下,其家人或爱人可能会选择进行死后辅助生殖(PAR,即使用保存的生殖材料进行未来组建家庭的尝试)。关于PAR的决策可能是在悲痛和丧亲之痛的背景下做出的,这涉及伦理和心理方面的考量,因为悲痛会使一个人做出明智决策的能力变得复杂。
通过使用五步伦理决策模型、美国心理学会的《心理学家伦理原则与行为准则》以及一个混合案例,对预后较差的AYA家庭进行PAR时的伦理和心理考量进行探讨并进行伦理分析。
伦理和心理考量包括评估对相关方造成伤害的可能性、以负责和诚实的态度进行PAR决策、审视PAR的可及性,以及考虑知情同意/赞同和自主性。
讨论了在悲痛背景下支持探索PAR的家庭和爱人的临床建议,包括提高临床医生对PAR的舒适度和能力、将悲痛纳入知情同意谈话、规范关于PAR的谈话,以及促进对PAR相关决策采取跨学科方法。