迈向适应力之旅：马来西亚东北部患有自闭症谱系障碍儿童的家长所采用的应对策略
A Journey towards Resilience: Coping Strategies Adopted by Parents with Children Having Autism Spectrum Disorder in Northeast Malaysia.
作者信息
Yaacob Wan Natrah Wan, Yaacob Lili Husniati, Zulkifli Maryam Mohd, Muhamad Rosediani
机构信息
Department of Family Medicine, School of Medical Sciences, Universiti Sains Malaysia, Kota Bharu 16150, Malaysia.
出版信息
Int J Environ Res Public Health. 2022 Feb 21;19(4):2458. doi: 10.3390/ijerph19042458.
BACKGROUND
The prevalence of Autism Spectrum Disorder (ASD) has been increasing for the past two decades. Parents with autism have been known to be at risk of psychological distress and maladaptation, but many parents were able to overcome this adversity and lead to a good quality of life.
METHODS
In-depth interviews were conducted among 21 parents of children with ASD. Interviews were transcribed and evaluated using thematic analysis.
RESULTS
The analysis discovered three main themes: acceptance and positive outlook, reaching for helping hands, and understanding autism and finding its solutions.
CONCLUSIONS
Although the findings cannot be generalised to other populations with ASD, this study provides a detailed perspective on their unique coping strategies. Insights gained from this study could help health care providers, authorities, and communities to address a specific need and able to advocate relevant support measures to assist them.
背景
在过去二十年中，自闭症谱系障碍（ASD）的患病率一直在上升。众所周知，自闭症患儿的父母有心理困扰和适应不良的风险，但许多父母能够克服这一困境，过上高质量的生活。
方法
对21位自闭症患儿的父母进行了深入访谈。访谈内容经转录后采用主题分析法进行评估。
结果
分析发现了三个主要主题：接纳与积极心态、寻求帮助、理解自闭症并寻找解决方案。
结论
尽管这些发现不能推广到其他自闭症谱系障碍人群，但本研究提供了关于他们独特应对策略的详细视角。从本研究中获得的见解可以帮助医疗保健提供者、当局和社区满足特定需求，并能够倡导相关支持措施来帮助他们。
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