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“它为每个人打开了一个全新的世界”:痴呆症患者的护理人员如何看待在线赋权对话交流课程。

'It opens up a whole new world for everybody': how carers of people with dementia view the online empowered conversations communication course.

作者信息

Eastham Cassie, Prior Yeliz, Keady John, Mansell Warren, Riley Cathy, Walters Mal, Morris Lydia

机构信息

Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK.

School of Health and Society, University of Salford, Salford, UK.

出版信息

Aging Ment Health. 2025 Mar;29(3):558-566. doi: 10.1080/13607863.2024.2410258. Epub 2024 Oct 9.

DOI:10.1080/13607863.2024.2410258
PMID:39381983
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11875430/
Abstract

OBJECTIVES

This paper explores (1) experiences of participating in Empowered Conversations, an online communication course for carers of people with dementia and (2) how participants felt the course had changed their experience of caring.

METHOD

Fifteen semi-structured interviews were completed with carers who had attended Empowered Conversations as part of a larger feasibility trial conducted in Greater Manchester, UK (ISRCTN15261686). Data were analysed using applied thematic analysis.

RESULTS

Three themes were developed: (1) You've got nothing to lose and everything to gain, including the course content, timing and format, and perceived burden and benefits of the course; (2). A community to share together, including the value of being honest, vulnerable, and sharing stories; and (3) Being given a new way to see the world, including understanding the person and their diagnosis, enabling greater control and reducing interpersonal conflict, and recalibrating their expectations.

CONCLUSION

Carers reported positive experiences of participating in Empowered Conversations and valued meeting people who, despite different circumstances, shared their understanding of supporting someone with dementia. The course supported participants to be honest and vulnerable, and helped them to rethink communication and have a greater appreciation of the other person's perspective during everyday interactions.

摘要

目标

本文探讨了(1)参与“赋能对话”(Empowered Conversations)的经历,这是一门针对痴呆症患者护理者的在线交流课程,以及(2)参与者如何感觉该课程改变了他们的护理体验。

方法

对15名护理者进行了半结构化访谈,这些护理者参加了“赋能对话”,该课程是在英国大曼彻斯特进行的一项更大规模可行性试验的一部分(国际标准随机对照试验编号:ISRCTN15261686)。使用应用主题分析法对数据进行分析。

结果

形成了三个主题:(1)你不会有任何损失,只会有一切收获,包括课程内容、时间安排和形式,以及对课程负担和益处的认知;(2)一个共同分享的社区,包括诚实、袒露心声和分享故事的价值;(3)获得一种看待世界的新方式,包括理解患者及其诊断,实现更大程度的掌控并减少人际冲突,以及重新调整期望。

结论

护理者报告了参与“赋能对话”的积极体验,并重视与那些尽管情况不同但却与他们同样理解如何支持痴呆症患者的人见面。该课程促使参与者诚实且袒露心声,并帮助他们重新思考沟通方式,在日常互动中更能理解他人的观点。

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本文引用的文献

1
Experiences of a communication-skills course for care partners of people living with dementia, empowered conversations: A qualitative framework analysis.痴呆症患者照护者沟通技巧课程体验:赋能对话,一个定性框架分析。
Br J Clin Psychol. 2024 Jun;63(2):227-243. doi: 10.1111/bjc.12447. Epub 2024 Jan 30.
2
Protocol of a feasibility randomised controlled trial of Empowered Conversations: training family carers to enhance their relationships and communication with people living with dementia.“赋能对话”可行性随机对照试验方案:培训家庭照顾者以改善其与痴呆症患者的关系及沟通
NIHR Open Res. 2023 Jul 10;3:36. doi: 10.3310/nihropenres.13441.1. eCollection 2023.
3
A mixed method study exploring gender differences in dementia caregiving.一项混合方法研究,旨在探索痴呆症护理中的性别差异。
Dementia (London). 2023 Nov;22(8):1862-1885. doi: 10.1177/14713012231201595. Epub 2023 Sep 23.
4
Use of technology by people with dementia and informal carers during COVID-19: A cross-country comparison.在 COVID-19 期间痴呆症患者和非正式护理者使用技术:跨国比较。
Int J Geriatr Psychiatry. 2022 Sep;37(9). doi: 10.1002/gps.5801.
5
eHealth and Web-Based Interventions for Informal Carers of People With Dementia in the Community: Umbrella Review.社区中痴呆症患者非正式照顾者的电子健康和基于网络的干预措施:伞式综述。
J Med Internet Res. 2022 Jul 22;24(7):e36727. doi: 10.2196/36727.
6
The Effectiveness of Multi-Component Interventions on the Positive and Negative Aspects of Well-Being among Informal Caregivers of People with Dementia: A Systematic Review and Meta-Analysis.多组分干预对痴呆患者非专业照护者幸福感积极和消极方面的影响:系统评价和荟萃分析。
Int J Environ Res Public Health. 2022 Jun 7;19(12):6973. doi: 10.3390/ijerph19126973.
7
A qualitative systematic review of the role of families in supporting communication in people with dementia.一项关于家庭在支持痴呆症患者沟通方面作用的定性系统评价。
Int J Lang Commun Disord. 2022 Sep;57(5):1130-1153. doi: 10.1111/1460-6984.12738. Epub 2022 Jun 17.
8
Group-Based Interventions for Carers of People With Dementia: A Systematic Review.针对痴呆症患者照料者的基于群体的干预措施:一项系统综述。
Innov Aging. 2022 Mar 6;6(3):igac011. doi: 10.1093/geroni/igac011. eCollection 2022.
9
Including ethnic minorities in dementia research: Recommendations from a scoping review.将少数民族纳入痴呆症研究:一项范围综述的建议
Alzheimers Dement (N Y). 2022 Apr 29;8(1):e12222. doi: 10.1002/trc2.12222. eCollection 2022.
10
Changes to postdiagnostic dementia support in England and Wales during the COVID-19 pandemic: a qualitative study.英格兰和威尔士在 COVID-19 大流行期间对诊断后痴呆症支持的变化:一项定性研究。
BMJ Open. 2022 Feb 2;12(2):e059437. doi: 10.1136/bmjopen-2021-059437.