School of Health and Life Sciences, Glasgow Caledonian University, Glasgow, UK.
School of Healthcare, Faculty of Medicine and Health, University of Leeds, Leeds, UK.
Health Technol Assess. 2024 Oct;28(67):1-100. doi: 10.3310/JTNT0476.
People with severe mental illness who experience co-occurring substance use experience poor outcome including suicide, violence, relapses and use of crisis services. They struggle to access care and treatment due to a lack of an integrated and co-ordinated approach which means that some people can fall between services. Despite these concerns, there is limited evidence as to what works for this population.
To undertake a realist evaluation of service models in order to identify and refine programme theories of what works under what contexts for this population.
Realist synthesis and evaluation using published literature and case study data.
Mental health, substance use and related services that had some form of service provision in six locations in the United Kingdom (five in England and one in Northern Ireland).
People with lived experience of severe mental illness and co-occurring substance use, carers and staff who work in the specialist roles as well as staff in mental health and substance use services.
Eleven initial programme theories were generated by the evidence synthesis and in conjunction with stakeholders. These theories were refined through focus groups and interviews with 58 staff, 25 service users and 12 carers across the 6 case study areas. We identified three forms of service provision (network, consultancy and lead and link worker); however, all offered broadly similar interventions. Evidence was identified to support most of the 11 programme theories. Theories clustered around effective leadership, workforce development and collaborative integrated care pathways. Outcomes that are meaningful for service users and staff were identified, including the importance of engagement.
The requirement for online data collection (due to the COVID-19 pandemic) worked well for staff data but worked less well for service users and carers. Consequently, this may have reduced the involvement of those without access to information technology equipment.
The realist evaluation co-occurring study provides details on how and in what circumstances integrated care can work better for people with co-occurring severe mental health and alcohol/drug conditions. This requires joined-up policy at government level and local integration of services. We have also identified the value of expert clinicians who can support the workforce in sustaining this programme of work. People with co-occurring severe mental health and alcohol/drug conditions have complex and multifaceted needs which require a comprehensive and long-term integrated approach. The shift to integrated health and social care is promising but will require local support (local expert leaders, network opportunities and clarity of roles).
Further work should evaluate the effectiveness and cost-effectiveness of service models for this group.
This study is registered as PROSPERO CRD42020168667.
This award was funded by the National Institute for Health and Care Research (NIHR) Health Technology Assessment programme (NIHR award ref: NIHR128128) and is published in full in ; Vol. 28, No. 67. See the NIHR Funding and Awards website for further award information.
同时患有严重精神疾病和物质使用障碍的人会经历较差的预后结果,包括自杀、暴力、复发和使用危机服务。由于缺乏综合协调的方法,他们难以获得护理和治疗,这意味着有些人可能会在服务之间脱节。尽管存在这些问题,但对于这一人群有效的方法证据有限。
通过开展服务模式的实际评估,确定并完善针对这一人群在何种背景下何种干预措施有效的项目理论。
利用已发表文献和案例研究数据进行实际主义综合评估和评价。
在英国六个地点(英格兰的五个和北爱尔兰的一个)的精神卫生、物质使用和相关服务中,有某种形式的服务提供。
有严重精神疾病和物质使用共病经历的患者、照护者以及专门从事这些角色的工作人员,以及精神卫生和物质使用服务机构的工作人员。
通过证据综合和利益相关者共同生成了 11 个初始项目理论。通过焦点小组和对 6 个案例研究区域的 58 名工作人员、25 名服务使用者和 12 名照护者进行访谈,对这些理论进行了完善。我们确定了三种服务提供形式(网络、咨询和领导和联络工作者);然而,所有这些都提供了大致相似的干预措施。有证据支持 11 个项目理论中的大多数。理论围绕有效的领导、劳动力发展和协作综合护理途径进行了聚类。确定了对服务使用者和工作人员有意义的结果,包括参与的重要性。
由于 COVID-19 大流行,需要进行在线数据收集,这对工作人员数据的收集效果很好,但对服务使用者和照护者的效果较差。因此,这可能减少了无法使用信息技术设备的人的参与。
实际主义评估共病研究详细说明了如何以及在何种情况下,为同时患有严重精神卫生和酒精/药物问题的人提供综合护理可以更好地发挥作用。这需要政府层面的政策协调以及服务的本地化整合。我们还确定了专家临床医生的价值,他们可以支持劳动力维持这项工作。同时患有严重精神卫生和酒精/药物问题的人有复杂和多方面的需求,需要全面和长期的综合方法。向综合卫生和社会保健的转变很有希望,但需要当地的支持(当地的专家领导、网络机会和明确的角色)。
应进一步评估针对这一人群的服务模式的有效性和成本效益。
本研究在 PROSPERO CRD42020168667 注册。
这项研究由英国国家卫生与保健卓越研究所(NIHR)健康技术评估计划(NIHR 拨款参考号:NIHR128128)资助,并全文发表于;第 28 卷,第 67 期。欲了解更多资助信息,请访问 NIHR 资助和奖项网站。