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认识无形之物:加强摩洛哥癌症护理中的家庭护理者教育

Recognizing the Unseen: Enhancing Family Caregiver Education in Morocco's Cancer Care.

作者信息

Hiba Bourissi, Soufiane Mellas

机构信息

Biomedical and Translational Research Laboratory, Faculty of Medicine, Pharmacy, and Dental Medicine, Sidi Mohamed Ben Abdellah University, Fes, MAR, Morocco.

出版信息

J Cancer Educ. 2025 Jun;40(3):470-471. doi: 10.1007/s13187-024-02521-x. Epub 2024 Oct 14.

DOI:10.1007/s13187-024-02521-x
PMID:39400685
Abstract

During my thesis, I had the opportunity to work closely with family caregivers of cancer patients. This allowed me to meet these individuals and hear their stories filled with suffering. A large part of their complaints centered on the lack of information and training necessary to properly care for their ill relatives. Often, they find themselves responsible for a patient at home without possessing the required skills, sometimes knowing only the dosage of treatments to administer. This lack of training can lead to serious complications, such as bedsores in immobile patients or urinary infections. This experience underscores the critical need for comprehensive caregiver education in Morocco, a country where family caregivers play a crucial role in oncology care, especially in home-based support. To achieve this, the government, health care professionals, and NGOs must collaborate to develop accessible educational programs that equip caregivers with the necessary skills and knowledge.

摘要

在撰写论文期间,我有机会与癌症患者的家庭护理人员密切合作。这使我得以结识这些人,并聆听他们充满苦难的故事。他们的大部分抱怨都集中在缺乏妥善照顾患病亲属所需的信息和培训上。通常,他们发现自己在家中照顾病人,却没有具备所需的技能,有时只知道要给予的治疗剂量。这种培训的缺乏可能导致严重的并发症,如行动不便患者的褥疮或尿路感染。这段经历凸显了摩洛哥全面开展护理人员教育的迫切需求,在这个国家,家庭护理人员在肿瘤护理中,尤其是在家居护理支持方面发挥着至关重要的作用。要实现这一点,政府、医疗保健专业人员和非政府组织必须合作,制定易于获取的教育项目,使护理人员具备必要的技能和知识。

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本文引用的文献

1
Exploring Factors Influencing the Physical and Mental Quality of Life of Caregivers of Cancer Patients: A Cross-Sectional Study at Hassan II University Hospital Center.探索影响癌症患者照顾者身心健康生活质量的因素:哈桑二世大学医院中心的一项横断面研究
Cureus. 2024 Sep 24;16(9):e70074. doi: 10.7759/cureus.70074. eCollection 2024 Sep.
2
Government Recognition and Support for Family Caregivers: A Comparative Review of Policies in Northern and Southern Countries With a Focus on Oncology Caregivers.政府对家庭照顾者的认可与支持:以肿瘤护理照顾者为重点的南北国家政策比较综述
Cureus. 2024 Jun 25;16(6):e63085. doi: 10.7759/cureus.63085. eCollection 2024 Jun.
3
Efficacy of a Virtual Education Program for Family Caregivers of Persons Living with Dementia.
虚拟教育计划对痴呆症患者家庭照顾者的疗效。
J Alzheimers Dis. 2022;86(4):1667-1678. doi: 10.3233/JAD-215359.
4
What seems to matter in public policy and the health of informal caregivers? A cross-sectional study in 12 European countries.在公共政策和非正式护工健康方面,什么似乎很重要?12 个欧洲国家的横断面研究。
PLoS One. 2018 Mar 8;13(3):e0194232. doi: 10.1371/journal.pone.0194232. eCollection 2018.