Female breast cancer survivor narratives on paths to healing after the conclusion of primary treatment: A qualitative study.

PURPOSE

Female breast cancer survivors (BCS) experience different paths to healing after the conclusion of primary treatment. This study sought to describe the experiences of female BCS in the months and years after primary treatment by determining how and when healing happens, as well as what healing means to BCS.

METHODS

A qualitative approach was used through thematic analysis of data collected through questionnaires and semi-structured interviews from 17 female BCS.

RESULTS

Data analysis identified four major themes: (i) the process of finishing treatment and continuity of care, (ii) support systems for BCS, (iii) self-efficacy and personal accountability, and (iv) the social transition after cancer.

CONCLUSIONS

Factors that affect the healing of BCS can be conceptualized as external or personal. Participants found that barriers to healing created by external factors were addressed by improved coordination of care and high-involvement transition programs as opposed to conversational support groups. Barriers created by personal factors were mitigated through organically formed support systems and promotion of self-efficacy and resilience. Participants expressed a desire for a shift in mainstream discourse to better reflect their experiences. Each BCS conceptualized survivorship differently, with some seeing a clear end to healing, and others who viewed it as a lifelong process.

IMPLICATIONS FOR CANCER SURVIVORS

Understanding the many paths to healing taken by BCS after concluding primary treatment, as well as common barriers to and catalysts for healing, can aid providers in addressing patient needs based on their individual experiences.