Murtha Cancer Center, Walter Reed National Military Medical Center, Bethesda, MD, 20889, USA.
Department of Medical and Clinical Psychology, Uniformed Services University of the Health Sciences, Bethesda, MD, 20814, USA.
J Cancer Surviv. 2018 Jun;12(3):291-305. doi: 10.1007/s11764-017-0668-2. Epub 2018 Mar 9.
Despite advancements in care, cancer survivors continue to report unmet needs following active cancer treatment. The Cancer Survivor Profile-Breast Cancer (CSPro-BC) application (app) was developed to help address these needs, using breast cancer survivors (BCS) as a pilot group. This paper describes the app development, BCS and nurse perceptions of the app, and changes made based on this feedback.
The CSPro-BC app was developed for use on an iPad and includes (1) administration of a 15-20-min survey assessing 18 needs, (2) generation of a profile of needs, relative to a reference group of BCS (median 2 years post-treatment), and (3) provision of problem-specific online resources. Perceptions of the app were evaluated using both quantitative and qualitative approaches. Feedback was elicited from nurse navigators and BCS. BCS were recruited until the point of saturation.
BCS (N = 11) were middle-aged and a median of 2.4 months post active treatment. Structured questionnaires indicated the following: survey covered meaningful problem areas, profile display was clear, and nurse's involvement was helpful. Follow-up interviews (2 weeks later) revealed that BCS shared their profile with others, but most BCS did not use the resources and those who did thought there were too many. Nurses (N = 3) said the app increased appointment time, but prompted them to discuss areas often not covered in typical BCS follow-up.
Feedback by end users directly informed revision of the app.
The CSPro-BC app has been optimized based on BCS feedback.
尽管在治疗方面取得了进步，但癌症幸存者在积极治疗癌症后仍报告存在未满足的需求。开发了癌症幸存者概况-乳腺癌（CSPro-BC）应用程序（app），以帮助解决这些需求，将乳腺癌幸存者（BCS）作为试点群体。本文描述了 app 的开发、BCS 和护士对 app 的看法，以及根据这些反馈进行的更改。
CSPro-BC app 是为在 iPad 上使用而开发的，包括（1）管理一个 15-20 分钟的调查，评估 18 项需求，（2）生成与 BCS 参考组（中位数为治疗后 2 年）的需求概况，以及（3）提供特定问题的在线资源。使用定量和定性方法评估了对 app 的看法。从护士导航员和 BCS 中获得反馈。招募 BCS，直到达到饱和点。
BCS（N=11）年龄在中年，活跃治疗后中位数为 2.4 个月。结构化问卷表明：调查涵盖了有意义的问题领域，概况显示清晰，护士的参与很有帮助。后续访谈（2 周后）显示，BCS 与他人分享了他们的概况，但大多数 BCS 没有使用资源，而那些使用资源的人认为资源太多。护士（N=3）表示，该应用程序增加了预约时间，但促使他们讨论通常在典型 BCS 随访中未涵盖的领域。
最终用户的反馈直接影响了 app 的修订。
CSPro-BC app 已根据 BCS 的反馈进行了优化。
