Tripathi Manjari, Sharma Sandhya, Ganapule Avinash, Dwivedi Rekha, Kaur Kirandeep, Shukla Vasundhara, Gomathy Saranya, Chandra Prarthana, Singh Rajesh Kumar, Vibha Deepti, Sagar Rajesh, Sood Mamta, Nehra Ashima, Tripathi Shashank
Department of Neurology, All India Institute of Medical Sciences, New Delhi, India.
Department of Psychiatry, All India Institute of Medical Sciences, New Delhi, India.
Ann Indian Acad Neurol. 2024 Sep 1;27(5):520-523. doi: 10.4103/aian.aian_305_24. Epub 2024 Oct 22.
Functional dissociative seizures (FDS) are very common in neurology clinics, they straddle both neurology and psychiatry. In India, scarce resources and guidelines are available for effectively conveying their diagnosis and management, which leads to a substantial gap in care. We aimed to provide an instructional module for FDS, tailored to clinicians, patients, and caregivers in Hindi, to enhance communication of diagnosis and facilitate suitable management strategies.
The instructional module development process was based on clinical settings and expert opinions. A standard translation process was performed to ensure the linguistic and cultural equivalence. Validation was carried out by a panel of 15 validators, comprising 13 neurologists and two psychiatrists, to identify key psychoeducation components and their significance. They were provided a questionnaire consisting of five questions that were related to completeness, understandability, legibility, clarification, and usefulness of educational material for clinicians, patients, and caregivers. Items were rated using a 5-point Likert scale.
There was agreement on four items (Q1, Q3, Q4, and Q5), whereas approximately 85% of the validators agreed on the remaining one item (Q2). The instructional module demonstrated high content validity as indicated by both item level-content validity index (0.98) and scale-level content validity index (0.97), alongside content validity ratio and modified kappa statistics.
The developed Hindi instructional module for FDS serves as a valuable tool to enhance the communication of FDS diagnosis and dispel misconceptions. This offers a comprehensive resource for clinicians, patients, and caregivers in India, potentially bridging gap in FDS care.
功能性分离性癫痫发作（FDS）在神经科门诊非常常见，它横跨神经科和精神科。在印度，用于有效传达其诊断和治疗的资源和指南稀缺，这导致了护理方面的巨大差距。我们旨在为FDS提供一个教学模块，以印地语为临床医生、患者和护理人员量身定制，以加强诊断的沟通并促进合适的管理策略。
教学模块的开发过程基于临床环境和专家意见。进行了标准的翻译过程以确保语言和文化的对等性。由15名验证者组成的小组进行了验证，其中包括13名神经科医生和2名精神科医生，以确定关键的心理教育组成部分及其重要性。他们收到了一份包含五个问题的问卷，这些问题与教育材料对临床医生、患者和护理人员的完整性、可理解性、易读性、清晰度和有用性有关。项目使用5点李克特量表进行评分。
在四个项目（问题1、问题3、问题4和问题5）上达成了一致，而大约85%的验证者在其余一个项目（问题2）上达成了一致。教学模块显示出较高的内容效度，项目层面的内容效度指数（0.98）和量表层面的内容效度指数（0.97）以及内容效度比和修正的kappa统计量均表明了这一点。
为FDS开发的印地语教学模块是加强FDS诊断沟通和消除误解的宝贵工具。这为印度的临床医生、患者和护理人员提供了一个全面的资源，有可能弥合FDS护理方面的差距。
