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“有好有坏”:居住在支持性居住和住宿照料服务中的智力残疾人对其住所的喜欢和不喜欢之处。

'It's Got Its Ups and Downs': What People With Intellectual Disabilities Living in Supported Living and Residential Care Like and Dislike About Their Home.

机构信息

Manchester Metropolitan University, Manchester, UK.

National Development Team for Inclusion, Bath, UK.

出版信息

J Appl Res Intellect Disabil. 2025 Jan;38(1):e13313. doi: 10.1111/jar.13313.

DOI:10.1111/jar.13313
PMID:39448520
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11848113/
Abstract

BACKGROUND

Given the current sociopolitical climate, people with intellectual disabilities are spending more time at home. Much housing-related research focuses on informant-completed measures and quantifiable outcomes. By contrast, this article explores the perspectives of adults with intellectual disabilities concerning what they liked or disliked about their homes.

METHOD

Data is drawn from 53 semi-structured interviews with people with intellectual disabilities in supported living or residential care in England.

RESULTS

Three themes were generated: space and place; people make or break a home; and day-to-day autonomy. These highlight the importance of belonging and the significance of other people in the creation of 'home'.

CONCLUSION

If people are to flourish, attention must be paid to aspects of the home that provide comfort, enjoyment, and a sense of belonging. These findings can benefit professionals, family members and people with intellectual disabilities, when considering current or future living arrangements.

摘要

背景

鉴于当前的社会政治氛围,智障人士在家中度过的时间越来越多。许多与住房相关的研究都集中在信息提供者完成的措施和可量化的结果上。相比之下,本文探讨了智障成年人对其家庭的喜好或不喜欢的看法。

方法

数据取自英格兰 53 名在支持性居住或住宿护理中生活的智障成年人的半结构化访谈。

结果

产生了三个主题:空间和地点;人成就或破坏家;以及日常自主权。这些主题强调了归属感的重要性以及其他人在创造“家”中的意义。

结论

如果人们要茁壮成长,就必须关注为他们提供舒适、享受和归属感的家庭方面。这些发现可以使专业人员、家庭成员和智障人士受益,在考虑当前或未来的居住安排时。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8315/11848113/fa5863f24a56/JAR-38-e13313-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8315/11848113/fa5863f24a56/JAR-38-e13313-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8315/11848113/fa5863f24a56/JAR-38-e13313-g001.jpg

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本文引用的文献

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Crit Soc Policy. 2023 Aug;43(3):423-447. doi: 10.1177/02610183221109147. Epub 2022 Jun 27.
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The outcomes of individualized housing for people with disability and complex needs: a scoping review.为残疾人士及有复杂需求者提供个性化住房的成果:一项范围综述
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Effect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic review.
去机构化对智力残疾成年人生活质量的影响:系统评价。
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Using the framework method for the analysis of qualitative data in multi-disciplinary health research.运用多学科健康研究中定性数据分析的框架方法。
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Correlates of everyday choice and support-related choice for 8,892 randomly sampled adults with intellectual and developmental disabilities in 19 states.19 个州内 8892 名随机抽样的智力和发育障碍成年人日常选择和支持相关选择的相关性。
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Moving beyond walkability: on the potential of health geography.超越可步行性:论健康地理学的潜力。
Soc Sci Med. 2012 Dec;75(11):1925-32. doi: 10.1016/j.socscimed.2012.08.013. Epub 2012 Aug 24.
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Deinstitutionalisation and community living: position statement of the Comparative Policy and Practice Special Interest Research Group of the International Association for the Scientific Study of Intellectual Disabilities.去机构化与社区生活:国际智力障碍科学研究协会比较政策与实践特别兴趣研究小组的立场声明
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