Perera Madhurangi, Halahakone Ureni, Senanayake Sameera, Kularatna Sanjeewa, Parsonage William, Yates Patsy, Singh Gursharan K
Cancer and Palliative Care Outcomes Centre, School of Nursing, Queensland University of Technology, Brisbane, QLD, Australia.
Centre for Healthcare Transformation, Faculty of Health, Queensland University of Technology, Brisbane, QLD, Australia.
Palliat Med. 2025 Jan;39(1):86-98. doi: 10.1177/02692163241290350. Epub 2024 Oct 30.
Palliative care and supportive care provided in the home for people with heart failure can improve quality of life, caregiver wellbeing and reduce healthcare costs. Identifying components of home-based palliative and supportive care in heart failure is useful to inform tailored care to people with heart failure.
To identify and describe components of home-based palliative and supportive care in adults with heart failure.
A scoping review was undertaken in accordance with Joanna Briggs Institute guidelines. The protocol was registered prospectively with the Open Science Framework (https://doi.org/10.17605/OSF.IO/GHCME).
Embase, PubMed, CINAHL and Cochrane databases were searched from inception in May 2023 and re-run in January 2024. Original research focussed on palliative and supportive care in the home setting that included adults diagnosed with heart failure who have not undergone nor awaiting a heart transplant was included.
Results were extracted from 13 papers based on eight studies. The findings highlight that nurses supported by a multidisciplinary team, providing symptom management, patient and carer education and discussion of goals of care and advance care planning, facilitates home-based palliative and supportive care for people with heart failure.
Ensuring patient and caregiver-centred care supported by a multidisciplinary team is essential to delivering home-based palliative and supportive care for people with heart failure. Further research focussed on the role of digital interventions in home-based palliative and supportive care, the composition of the multidisciplinary team and research which includes individuals across all stages of heart failure is needed.
为心力衰竭患者提供的居家姑息治疗和支持性护理可改善生活质量、照顾者的健康状况并降低医疗成本。确定居家心力衰竭姑息治疗和支持性护理的组成部分有助于为心力衰竭患者提供量身定制的护理。
确定并描述成年心力衰竭患者居家姑息治疗和支持性护理的组成部分。
根据乔安娜·布里格斯研究所的指南进行了一项范围综述。该方案已在开放科学框架（https://doi.org/10.17605/OSF.IO/GHCME）上进行了前瞻性注册。
检索了Embase、PubMed、CINAHL和Cochrane数据库，检索时间从2023年5月开始，2024年1月重新运行。纳入了以居家环境下的姑息治疗和支持性护理为重点的原创性研究，其中包括已被诊断为心力衰竭但未接受心脏移植也未等待心脏移植的成年人。
从基于八项研究的13篇论文中提取了结果。研究结果表明，在多学科团队的支持下，护士提供症状管理、患者及照顾者教育以及护理目标和预立医疗计划的讨论，有助于为心力衰竭患者提供居家姑息治疗和支持性护理。
确保以患者和照顾者为中心的护理并得到多学科团队的支持，对于为心力衰竭患者提供居家姑息治疗和支持性护理至关重要。需要进一步开展研究，重点关注数字干预在居家姑息治疗和支持性护理中的作用、多学科团队的组成以及涵盖心力衰竭各个阶段患者的研究。
