Solaimanimoghaddam Rasool, Beydokhti Tahereh Baloochi, Firouzkohi Mohammad Reza
Social Determinants of Health Research Center, Birjand University of Medical Sciences, Birjand, Iran.
Medical-Surgical Nursing Department, School of Nursing, Gonabad University of Medical Sciences, Gonabad, Iran.
Iran J Nurs Midwifery Res. 2024 Sep 4;29(5):535-541. doi: 10.4103/ijnmr.ijnmr_276_22. eCollection 2024 Sep-Oct.
Several challenges are experienced by caregivers of patients with chronic kidney disease undergoing hemodialysis treatment. These difficulties pertain to the patients, their hemodialysis treatment, and other caregiving responsibilities and concerns. Given the adverse effects of caring for individuals with such conditions on the lives of caregivers, this study aims to investigate the experiences of hemodialysis patients' family caregivers.
A qualitative study with a descriptive, phenomenological approach was conducted in the hemodialysis department of a teaching hospital in Birjand, Iran, in 2022. Fourteen participants were selected through purposive sampling. The data were collected through semistructured interviews and analyzed using Colaizzi's method.
The participants were caregivers of dialysis patients who had a 6-month history of caring for patients and were first-degree relatives of the patient. A total of 278 initial codes emerged, which were categorized into three overarching themes and eight subthemes based on the research purpose and question. The overarching themes comprised caregiver time and cost strain, social challenges faced by the caregiver, and life challenges faced by the caregiver.
Caregivers of patients with chronic kidney disease face problems in multiple dimensions and are susceptible to developing new problems. The majority of caregivers in this study were extremely vulnerable women; if they experience difficulties, the family's foundation will be weakened. Therefore, caregivers should be included in patients' treatment plans. The expression of caregivers' experiences can help solve the problems they are facing and also helps hospital managers and health planners better plan to solve problems.
接受血液透析治疗的慢性肾病患者的照料者面临着诸多挑战。这些困难涉及患者本身、他们的血液透析治疗以及其他照料职责和担忧。鉴于照料此类患者对照料者生活产生的不利影响，本研究旨在调查血液透析患者家庭照料者的经历。
2022年在伊朗比尔詹德一家教学医院的血液透析科进行了一项采用描述性现象学方法的定性研究。通过目的抽样选取了14名参与者。通过半结构化访谈收集数据，并使用科莱齐方法进行分析。
参与者是透析患者的照料者，他们有6个月的患者照料史，且是患者的一级亲属。总共出现了278个初始编码，根据研究目的和问题将其分为三个总体主题和八个子主题。总体主题包括照料者的时间和经济压力、照料者面临的社会挑战以及照料者面临的生活挑战。
慢性肾病患者的照料者在多个维度面临问题，且容易出现新问题。本研究中的大多数照料者是极度脆弱的女性；如果她们遇到困难，家庭基础将被削弱。因此，应将照料者纳入患者的治疗计划。照料者经历的表达有助于解决他们面临的问题，也有助于医院管理者和卫生规划者更好地规划解决问题的方案。
