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本文引用的文献

1
A systematic review of research on augmentative and alternative communication brain-computer interface systems for individuals with disabilities.对用于残疾人的增强和替代沟通脑机接口系统的研究进行的系统综述。
Front Hum Neurosci. 2022 Jul 27;16:952380. doi: 10.3389/fnhum.2022.952380. eCollection 2022.
2
Facilitators and barriers to developing romantic and sexual relationships: lived experiences of people with complex communication needs.促进和阻碍发展浪漫和性关系的因素:具有复杂沟通需求人士的生活体验。
Augment Altern Commun. 2022 Mar;38(1):1-14. doi: 10.1080/07434618.2022.2046852. Epub 2022 Mar 11.
3
AAC and Artificial Intelligence (AI).抗酸杆菌与人工智能
Top Lang Disord. 2019 Oct-Dec;39(4):389-403. doi: 10.1097/tld.0000000000000197.
4
Critiquing the Concept of BCI Illiteracy.批判脑机接口文盲概念。
Sci Eng Ethics. 2019 Aug;25(4):1217-1233. doi: 10.1007/s11948-018-0061-1. Epub 2018 Aug 16.

借助辅助和替代沟通方式构想别样未来:一份宣言。

Imagining alternative futures with augmentative and alternative communication: a manifesto.

作者信息

Sellwood Darryl, McLeod Lateef, Williams Kevin, Brown Katie, Pullin Graham

机构信息

Flinders University, Adelaide, South Australia, Australia.

California Institute of Integral Studies, Oakland, California, USA.

出版信息

Med Humanit. 2025 Jan 2;50(4):620-623. doi: 10.1136/medhum-2024-013022.

DOI:10.1136/medhum-2024-013022
PMID:39481863
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11877025/
Abstract

This manifesto seeks to challenge dominant narratives about the future of augmentative and alternative communication (AAC). Current predictions are mainly driven by technological developments-technologies usually being developed for different markets-and are often based on ableist assumptions. In online conversations and a discussion panel at the 2023 International Society for Augmentative and Alternative Communication conference, we explored alternative futures by adopting different starting positions. Our case is presented under five headings: questioning the dominance of predictions that artificial intelligence and brain-computer interfaces will define the future of AAC; resisting disability being framed medically, as a problem to be solved, yet acknowledging both the pleasures and pains of being disabled; declaring that people who use AAC-as cyborgs of necessity rather than choice-should have choice and ownership of our technologies; challenging notions of independence as the necessary end goal for disabled bodies and considering interdependence as a human right; imagining alternative futures in which all people who use AAC are accepted and embraced for our communication and self-expression. This manifesto is an invitation for further discussion, and we welcome responses. While our focus is AAC, and three of the authors use AAC, we believe that our stance could be relevant to other disability communities in turn. This paper is about who gets to imagine disability futures and whose voices are left out. It is about how uncritical these futures can be, often presuming values that disabled people, in all their diversity, may not share.

摘要

本宣言旨在挑战关于辅助与替代沟通(AAC)未来的主流叙事。当前的预测主要由技术发展驱动——这些技术通常是为不同市场开发的——并且常常基于能力主义假设。在2023年国际辅助与替代沟通协会会议的线上对话和讨论小组中,我们通过采用不同的出发点探索了不同的未来。我们的观点分为五个部分阐述:质疑人工智能和脑机接口将定义AAC未来这一预测的主导地位;抵制将残疾从医学角度进行界定,将其视为一个有待解决的问题,同时承认残疾所带来的痛苦与快乐;宣称使用AAC的人——作为必要而非出于选择的半机械人——应该对我们的技术拥有选择权和所有权;挑战将独立视为残疾群体必然终极目标的观念,并将相互依存视为人权;设想一个所有人使用AAC进行沟通和自我表达都能被接受和包容的未来。本宣言旨在引发进一步讨论,我们欢迎各方回应。虽然我们关注的是AAC,且三位作者使用AAC,但我们认为我们的立场也可能与其他残疾群体相关。本文探讨的是谁有权想象残疾群体的未来以及哪些人的声音被遗漏了。探讨的是这些未来可能有多缺乏批判性,常常假定各种残疾人群体可能并不认同的价值观。