Graduate Program in Rehabilitation Sciences, Department of Physiotherapy, School of Physical Education, Physiotherapy, and Occupational Therapy, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil.
Faculty of Physiotherapy, Universidade Federal de Juiz de Fora, Juiz de Fora, Brazil.
Child Care Health Dev. 2024 Nov;50(6):e70001. doi: 10.1111/cch.70001.
Care for patients with cerebral palsy (CP) poses significant challenges, with emphasis on the crucial role of family involvement in patients' well-being. The Family Empowerment Scale (FES) assesses parents/caregivers' perception of their ability to promote and influence their children's development in three domains: family, service system and community.
The objectives of this study were to translate the FES into Brazilian Portuguese, to develop a calculator for data transformation and analysis and to evaluate the psychometric properties of the scale with Brazilian caregivers of children and adolescents with CP.
Translation occurred in four stages: translation, synthesis, back-translation and review of the translated version. A calculator was then developed in the Excel program, to present data in absolute values and graphically for each subscale. Statistical analysis included Bland-Altman, Intraclass Correlation Coefficient (ICC), Internal Consistency, and Floor and Ceiling Effect.
In total, 50 parents and caregivers participated to the measurement properties investigation, and the scale demonstrated good reliability for the family (ICC = 0.80) and services (ICC = 0.81) subscales, as well as for the overall scale (ICC = 0.88). The community subscale showed moderate reliability (ICC = 0.68), with an adequate Cronbach's alpha (0.89). The FES showed no ceiling or floor effects and a small limit of agreement. The data of all participants were analysed using the calculator.
The FES-Brazilian Portuguese presented good reliability for assessing family empowerment in caregivers of children and adolescents with CP in Brazil, offering insights into this construct and guiding family-centred interventions. In addition, the calculator could be viable for adequate management and dissemination of data.
照顾脑瘫（CP）患者带来了巨大的挑战，强调了家庭参与对患者福祉的重要性。家庭赋权量表（FES）评估父母/照顾者对促进和影响其子女在家庭、服务系统和社区三个领域发展的能力的看法。
本研究的目的是将 FES 翻译成巴西葡萄牙语，开发一个用于数据转换和分析的计算器，并评估该量表在巴西 CP 儿童和青少年的照顾者中的心理测量特性。
翻译分为四个阶段：翻译、综合、回译和翻译版本的审查。然后在 Excel 程序中开发了一个计算器，以绝对数值和图形形式呈现每个子量表的数据。统计分析包括 Bland-Altman、组内相关系数（ICC）、内部一致性和地板和天花板效应。
共有 50 名家长和照顾者参与了测量特性调查，该量表在家庭（ICC=0.80）和服务（ICC=0.81）分量表以及总体量表（ICC=0.88）方面具有良好的可靠性。社区分量表显示出中等的可靠性（ICC=0.68），Cronbach's alpha 为 0.89。FES 没有天花板或地板效应，并且有较小的一致性限制。使用计算器分析了所有参与者的数据。
FES-巴西葡萄牙语在评估巴西 CP 儿童和青少年照顾者的家庭赋权方面具有良好的可靠性，为这一结构提供了深入的了解，并指导以家庭为中心的干预措施。此外，计算器可以有效地管理和传播数据。
