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A Unified Set of Patient-inspired Health Concepts for Chronic Obstructive Pulmonary Disease: A North Star for Understanding Treatment Benefit.

作者信息

Hamilton Alan, Leidy Nancy Kline, Duenas Ashley I, Skovlund Soren E, Miller Bruce E

机构信息

Patient-Centered Research, COPD Foundation, Miami, Florida.

Department of Health Research Methods, Evidence, and Impact, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada.

出版信息

Ann Am Thorac Soc. 2025 Mar;22(3):317-321. doi: 10.1513/AnnalsATS.202408-864IP.

DOI:10.1513/AnnalsATS.202408-864IP
PMID:39499813
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11892663/
Abstract
摘要
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4424/11892663/d507ed71bc27/AnnalsATS.202408-864IPf2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4424/11892663/16338dbf2d19/AnnalsATS.202408-864IPUf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4424/11892663/94c7628e057c/AnnalsATS.202408-864IPf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4424/11892663/d507ed71bc27/AnnalsATS.202408-864IPf2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4424/11892663/16338dbf2d19/AnnalsATS.202408-864IPUf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4424/11892663/94c7628e057c/AnnalsATS.202408-864IPf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4424/11892663/d507ed71bc27/AnnalsATS.202408-864IPf2.jpg

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本文引用的文献

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Thorax. 2023 Dec;78(12):1240-1247. doi: 10.1136/thorax-2023-220522. Epub 2023 Sep 27.
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ERS statement: a core outcome set for clinical trials evaluating the management of COPD exacerbations.ERS 声明：用于评估 COPD 加重管理的临床试验的核心结局集。
Eur Respir J. 2022 May 5;59(5). doi: 10.1183/13993003.02006-2021. Print 2022 May.
3
Co-creation of practical "how-to guides" for patient engagement in key phases of medicines development-from theory to implementation.
共同创建实用的“操作指南”，以促进患者在药物研发关键阶段的参与——从理论到实践。
Res Involv Engagem. 2021 Aug 23;7(1):57. doi: 10.1186/s40900-021-00294-x.
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Sustaining Meaningful Patient Engagement Across the Lifecycle of Medicines: A Roadmap for Action.贯穿药品全生命周期的有意义的患者参与：行动路线图。
Ther Innov Regul Sci. 2021 Sep;55(5):936-953. doi: 10.1007/s43441-021-00282-z. Epub 2021 May 10.
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The COMET Handbook: version 1.0.《COMET手册：第1.0版》
Trials. 2017 Jun 20;18(Suppl 3):280. doi: 10.1186/s13063-017-1978-4.
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Core outcome sets for research and clinical practice.核心结局集用于研究和临床实践。
Braz J Phys Ther. 2017 Mar-Apr;21(2):77-84. doi: 10.1016/j.bjpt.2017.03.001. Epub 2017 Mar 18.
7
Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development.超越研究参与者：在药物产品开发中评估治疗获益时，用于使患者参与临床结局评估的选择或制定的框架。
Qual Life Res. 2018 Jan;27(1):5-16. doi: 10.1007/s11136-017-1577-6. Epub 2017 Apr 19.
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Enhancing exercise tolerance and physical activity in COPD with combined pharmacological and non-pharmacological interventions: PHYSACTO randomised, placebo-controlled study design.采用药物和非药物联合干预提高慢性阻塞性肺疾病患者的运动耐量和身体活动能力：PHYSACTO随机、安慰剂对照研究设计
BMJ Open. 2016 Apr 13;6(4):e010106. doi: 10.1136/bmjopen-2015-010106.
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