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我们没有引发这场“火”……还是我们引发了?——医学煤气灯效应的叙述性综述及医学无效化介绍

We didn't start the fire…or did we?-a narrative review of medical gaslighting and introduction to medical invalidation.

作者信息

Fuss Alexandra, Jagielski Christina H, Taft Tiffany

机构信息

Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA.

University of Michigan/Michigan Medicine, Ann Arbor, MI, USA.

出版信息

Transl Gastroenterol Hepatol. 2024 Aug 26;9:73. doi: 10.21037/tgh-24-26. eCollection 2024.

DOI:10.21037/tgh-24-26
PMID:39503036
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11535807/
Abstract

BACKGROUND AND OBJECTIVE

Gaslighting is defined as behaviors inflicted on an individual which invalidate or call into question their ability to judge their own lived experience. Research into gaslighting in other contexts, such as domestic violence, underscore its potentially damaging effects. Medical gaslighting is an increasingly used, but poorly defined issue in a progressively more complex healthcare system in the United States. Limited studies constructively evaluate this breakdown in the provider-patient relationship and no studies exist evaluating gaslighting in the care of patients with digestive diseases. This narrative review aims to add clarity to the definition of medical gaslighting, evaluate the mechanisms that perpetuate gaslighting in gastroenterology practice and offer pragmatic solutions to begin to reduce its prevalence.

METHODS

Narrative overview of the literature retrieved from searches of computerized databases.

KEY CONTENT AND FINDINGS

The potential root causes of gaslighting in gastroenterology practices are multifaceted and complex, and encompass patient, provider, and systemic factors.

CONCLUSIONS

An important distinction for medical gaslighting from other forms of gaslighting is the role of intent. As such, we propose the term "medical invalidation" be added to this construct and conceptualize medical gaslighting as occurring on a continuum. Within each facet of the relationship between system, provider and patient there are opportunities to prevent and recover from the occurrence of medical invalidation/medical gaslighting.

摘要

背景与目的

煤气灯效应被定义为施加于个人的行为,这些行为会使他们对自身生活经历的判断无效或受到质疑。对家庭暴力等其他情境下煤气灯效应的研究强调了其潜在的破坏性影响。在美国日益复杂的医疗体系中,医疗煤气灯效应是一个使用越来越频繁但定义模糊的问题。仅有有限的研究对医患关系中的这种破裂进行了建设性评估,尚无研究评估消化系统疾病患者护理中的煤气灯效应。本叙述性综述旨在明确医疗煤气灯效应的定义,评估胃肠病学实践中使煤气灯效应持续存在的机制,并提供切实可行的解决方案以开始降低其发生率。

方法

对通过计算机数据库检索获得的文献进行叙述性概述。

关键内容与发现

胃肠病学实践中煤气灯效应的潜在根本原因是多方面且复杂的,包括患者、医护人员和系统因素。

结论

医疗煤气灯效应与其他形式煤气灯效应的一个重要区别在于意图的作用。因此,我们建议在这个概念中加入“医疗否定”一词,并将医疗煤气灯效应概念化为一个连续体。在系统、医护人员和患者之间关系的每个方面,都有机会预防医疗否定/医疗煤气灯效应的发生并从中恢复。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f3e3/11535807/591025d1272b/tgh-09-24-26-f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f3e3/11535807/591025d1272b/tgh-09-24-26-f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f3e3/11535807/591025d1272b/tgh-09-24-26-f1.jpg

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"I Just Want to Feel Safe Going to a Doctor": Experiences of Female Patients with Chronic Conditions in Australia.“我只想在看医生时感到安全”:澳大利亚慢性病女性患者的经历
Womens Health Rep (New Rochelle). 2022 Dec 22;3(1):1016-1028. doi: 10.1089/whr.2022.0052. eCollection 2022.
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Psychosomatic symptoms related to exacerbation of fatigue in patients with medically unexplained symptoms.
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J Gen Fam Med. 2022 Oct 11;24(1):24-29. doi: 10.1002/jgf2.582. eCollection 2023 Jan.
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The Pervasive Impact of the Stigmatization of Gastrointestinal Diseases-A Patient's Perspective.胃肠道疾病污名化的普遍影响——患者视角。
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Communication interventions for medically unexplained symptom conditions in general practice: A systematic review and meta-analysis of randomised controlled trials.在全科医学中针对医学无法解释的症状的沟通干预措施:随机对照试验的系统评价和荟萃分析。
PLoS One. 2022 Nov 14;17(11):e0277538. doi: 10.1371/journal.pone.0277538. eCollection 2022.
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