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探索加拿大新不伦瑞克省癌症幸存者及其护理人员获得支持性护理服务的经历。

Exploring the experiences of cancer survivors and their caregivers accessing supportive care services in New Brunswick, Canada.

作者信息

Schwarz Charlotte, Luke Alison, Besner Julia, MacNeill Luke, Ashfield Lauren Renée, Easley Julie, McIntosh-Lawrence Stephanie, Doucet Shelley

机构信息

Research Coordinator, Department of Nursing and Health Sciences, University of New Brunswick, 100 Tucker Park Rd, Saint John, NB, E2K 5E2.

Research Associate, Department of Nursing and Health Sciences, University of New Brunswick, 100 Tucker Park Rd, Saint John, NB, E2K 5E2.

出版信息

Can Oncol Nurs J. 2024 Nov 1;34(4):523-538. doi: 10.5737/23688076344523. eCollection 2024 Fall.

Abstract

Supportive care services can reduce distress and improve quality of life for cancer survivors and their caregivers. However, people often struggle to access these services. With this issue in mind, the current study aimed to explore the experiences of cancer survivors and their caregivers in accessing supportive care services in New Brunswick, Canada, as well as their prospective interest in a provincial supportive care centre. Forty-four individuals participated in an online or mail survey designed to identify experiences accessing supportive care services and supportive care needs. Results indicated the supportive care services that are most important to participants (e.g., mental and emotional support). Many participants noted that they were unaware of the availability of follow-up services and methods of access. Participants had a variety of unmet care requirements including lack of informational support and care coordination. All participants reported that they would like to have a supportive care centre in New Brunswick. These findings offer important recommendations for improving the coordination and delivery of supportive cancer care for this population.

摘要

支持性护理服务可以减轻癌症幸存者及其护理人员的痛苦并提高他们的生活质量。然而,人们往往难以获得这些服务。考虑到这一问题,当前的研究旨在探索加拿大新不伦瑞克省癌症幸存者及其护理人员在获得支持性护理服务方面的经历,以及他们对省级支持性护理中心的潜在兴趣。44个人参与了一项在线或邮寄调查,该调查旨在确定获得支持性护理服务的经历和支持性护理需求。结果表明了对参与者最重要的支持性护理服务(例如,心理和情感支持)。许多参与者指出,他们不知道后续服务的可用性和获取方法。参与者有各种未满足的护理需求,包括缺乏信息支持和护理协调。所有参与者都表示希望在新不伦瑞克省有一个支持性护理中心。这些发现为改善该人群的癌症支持性护理的协调和提供提供了重要建议。

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The Supportive Care Needs of Cancer Patients: a Systematic Review.癌症患者的支持性护理需求:系统评价。
J Cancer Educ. 2021 Oct;36(5):899-908. doi: 10.1007/s13187-020-01941-9. Epub 2021 Jan 25.
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Supportive Care: An Indispensable Component of Modern Oncology.支持性护理:现代肿瘤学不可或缺的组成部分。
Clin Oncol (R Coll Radiol). 2020 Nov;32(11):781-788. doi: 10.1016/j.clon.2020.07.020. Epub 2020 Aug 16.
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Supportive care in cancer-a MASCC perspective.从多国癌症支持治疗协会的视角看癌症的支持性护理。
Support Care Cancer. 2020 Aug;28(8):3467-3475. doi: 10.1007/s00520-020-05447-4. Epub 2020 Apr 27.
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Experiences of adult cancer survivors in transitions.成人癌症幸存者的过渡期体验。
Support Care Cancer. 2019 Aug;27(8):2977-2986. doi: 10.1007/s00520-018-4605-3. Epub 2018 Dec 26.

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