Methodological and Implementation Research Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada
Methodological and Implementation Research Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
BMJ Open. 2024 Nov 9;14(11):e089220. doi: 10.1136/bmjopen-2024-089220.
Digital health tools can be beneficial in the care of patients with chronic conditions and have the potential for widespread impact as readily scalable and cost-effective health interventions. However, benefits are often contingent on users sustaining their engagement with these tools over time. Sustained engagement with digital health tools can be challenging, and high rates of attrition from digital interventions are common. Inflammatory Bowel Disease (IBD) and irritable bowel syndrome (IBS) are prominent gastrointestinal conditions resulting in significant burdens for individuals and society. Emerging evidence suggests digital health tools can be beneficial for IBD and IBS management; however, it is not clear what barriers and enablers are experienced by people living with these conditions to sustaining their engagement with these tools, when necessary. Such knowledge could inform the tailoring of new and existing digital health tools to the needs of people living with IBD and/or IBS. This study will seek to identify the barriers and enablers of sustained engagement with digital health tools among adults living with IBD and/or IBS.
We will conduct semistructured interviews with a purposive sample of approximately 30 adults (>18 years) who (a) reside in Canada, (b) self-report that they have been diagnosed with IBD and/or IBS, (c) have ever used a digital health tool (ie, any application/platform) to manage their condition and (d) are capable of providing informed consent. Interviews will be audio and video recorded and transcribed verbatim. Data will be coded deductively and barriers and enablers to sustained engagement will be categorised in accordance with the Theoretical Domains Framework. Data analysis will be verified by a patient research partner.
The study has been approved by the Ottawa Health Science Network Research Ethics Board. The findings will inform the codevelopment of strategies to overcome modifiable barriers and leverage identified enablers of sustained engagement with digital health tools for IBD and IBS care. These strategies can inform the design of new, or modifications to existing, digital health tools for IBD and IBS care where sustained engagement is desirable. Strategies will be compiled into a guidebook and disseminated via the Inflammation, Microbiome and Alimentation: Gastro-Intestinal and Neuropsychiatric Effects (IMAGINE) Strategy for Patient Oriented Research chronic disease network in Canada.
数字健康工具在慢性病患者的护理中可能具有益处，并且作为易于扩展和具有成本效益的健康干预措施，具有广泛的影响潜力。然而，这些好处往往取决于用户是否能够长期持续使用这些工具。数字健康工具的持续使用可能具有挑战性，并且数字干预措施的高退出率很常见。炎症性肠病（IBD）和肠易激综合征（IBS）是突出的胃肠道疾病，给个人和社会带来了重大负担。新出现的证据表明，数字健康工具可能有益于 IBD 和 IBS 的管理；然而，尚不清楚患有这些疾病的人在需要时维持对这些工具的使用的障碍和促进因素。这种知识可以为新的和现有的数字健康工具根据 IBD 和/或 IBS 患者的需求进行调整提供信息。本研究将试图确定成年人维持使用 IBD 和/或 IBS 数字健康工具的障碍和促进因素。
我们将对大约 30 名成年人（>18 岁）进行半结构式访谈，这些成年人（a）居住在加拿大，（b）自我报告患有 IBD 和/或 IBS，（c）曾经使用过数字健康工具（即，任何应用程序/平台）来管理他们的病情，并且（d）能够提供知情同意。访谈将进行录音和录像，并逐字记录。数据将按照理论领域框架进行推断编码，障碍和促进因素将按照可持续参与的类别进行分类。数据分析将由一名患者研究合作伙伴进行验证。
该研究已获得渥太华健康科学网络研究伦理委员会的批准。研究结果将为制定克服可改变的障碍和利用数字健康工具维持参与 IBD 和 IBS 护理的识别促进因素的策略提供信息。这些策略可以为新的数字健康工具的设计提供信息，或者对 IBD 和 IBS 护理中需要持续参与的现有数字健康工具进行修改。策略将被汇编成一本指南，并通过加拿大炎症、微生物组和营养：胃肠道和神经精神影响（IMAGINE）患者导向研究慢性病网络进行传播。
