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预防和管理严重过敏反应的10项实际优先事项:盖伦过敏关怀与欧洲过敏反应协会过敏反应宣言

10 practical priorities to prevent and manage serious allergic reactions: GALEN ANACare and EFA Anaphylaxis Manifesto.

作者信息

Muraro Antonella, de Silva Debra, Podesta Marcia, Anagnostou Aikaterini, Cardona Victoria, Halken Susanne, Smith Pete, Tanno Luciana Kase, Turner Paul, Worm Margitta, Alvaro-Lozano Montserrat, Arasi Stefania, Asarnoj Anna, Barni Simona, Beyer Kirsten, Bilaver Lucy A, Bird Andrew, Bonaguro Roberta, Brough Helen A, Chinthrajah R Sharon, Cook Emma E, Demoulin Céline, Deschildre Antoine, Dribin Timothy E, Ebisawa Motohiro, Fernandez-Rivas Montserrat, Fiocchi Alessandro, Fleischer David M, Garrow Eleanor, Gerdts Jennifer, Giovannini Mattia, Järvinen Kirsi M, Kelly Mary, Knol Edward F, Lack Gideon, Lazzarotto Francesca, Le Thuy-My, Leonard Stephanie, Lieberman Jay, Makris Michael, Mandelbaum Lianne, Marchisotto Mary Jane, Marino Gustavo Andres, Mori Francesca, Nilsson Caroline, Nowak-Wegrzyn Anna, Odemyr Mikaela, Oude Elberink H N G, Palosuo Kati, Patel Nandinee, Pier Jennifer, Poblete Sung, Rachid Rima, Rodríguez Del Río Pablo, Said Maria, Sampson Hugh A, Sánchez Sanz Angel, Schnadt Sabine, Schultz Fallon, Toniolo Alice, Upton Julia E M, Venter Carina, Vickery Brian P, Vlieg-Boerstra Berber, Wang Julie, Roberts Graham, Zuberbier Torsten

机构信息

Padua University Hospital, Padua, Italy.

The Evidence Centre, London, UK.

出版信息

Clin Transl Allergy. 2024 Dec;14(12):e70009. doi: 10.1002/clt2.70009.

Abstract

This Anaphylaxis Manifesto calls on communities to prioritise 10 practical actions to improve the lives of people at risk of serious allergic reactions. The Global Allergy and Asthma European Network and the European Federation of Allergy and Airways Diseases Patients' Associations (EFA) compiled patient-centric priorities. We used qualitative consensus methods, research evidence and feedback from over 200 patient groups, stakeholder organisations and healthcare professionals. We encourage healthcare, education and food organisations to collaborate with people at risk of serious allergic reactions to tackle safety, anxiety and financial burdens for individuals and societies. Key priorities for prevention include awareness-raising campaigns for the public and professionals, school and workplace initiatives and mandatory precautionary allergen labels on food. Priorities for improving immediate and long-term management include educating healthcare professionals, patients and schools about when and how to use adrenaline, funding two approved adrenaline devices for everyone at risk, and facilitating access to allergy specialists. Integrated care pathways should include clinical and non-clinical management options such as individualised risk assessment and quality of life assessment, self-management plans, dietetic and psychosocial support and peer support. Organisations around the world are committing to work together towards these priorities.

摘要

这份《过敏反应宣言》呼吁各界优先采取10项切实可行的行动,以改善有严重过敏反应风险人群的生活。全球过敏与哮喘欧洲网络以及欧洲过敏与气道疾病患者协会联盟(EFA)制定了以患者为中心的优先事项。我们采用了定性共识方法、研究证据以及来自200多个患者群体、利益相关组织和医疗专业人员的反馈。我们鼓励医疗、教育和食品组织与有严重过敏反应风险的人群合作,以解决个人和社会面临的安全、焦虑和经济负担问题。预防方面的关键优先事项包括针对公众和专业人员的提高认识运动、学校和工作场所倡议以及食品上的强制性预防性过敏原标签。改善即时和长期管理的优先事项包括对医疗专业人员、患者和学校进行关于何时以及如何使用肾上腺素的教育,为每个有风险的人提供两种经批准的肾上腺素设备,并促进获得过敏专科医生的服务。综合护理途径应包括临床和非临床管理选项,如个性化风险评估和生活质量评估、自我管理计划、饮食和心理社会支持以及同伴支持。世界各地 的组织正致力于共同朝着这些优先事项努力。

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