Kirillovich Marina, Rajabali Saima, Wagg Adrian
Division of Geriatric Medicine, Department of Medicine, University of Alberta, Edmonton, AB, Canada.
Can Geriatr J. 2024 Dec 1;27(4):473-484. doi: 10.5770/cgj.27.758. eCollection 2024 Dec.
Urinary incontinence (UI), the complaint of involuntary leakage of urine, has a substantial impact on the quality of life of older adults. Most UI research is driven by researchers and lacks the patient perspective. The goal of this qualitative study was to gain the perspective of older adults in formulating a research agenda tailored to address their questions and improve their experience with managing UI.
Implementing a community-based participatory research framework, an advisory group of eight older adults with UI were recruited to be on the research team. An initial focus group was conducted to learn about their research needs. Nominal Group Technique was used to reach saturation of themes and data was analyzed thematically. Employing a Delphi consensus method, a national online questionnaire containing 20 priorities for future UI research and education was developed in collaboration with the advisory group.
59 older adults with UI rated each priority on a Likert scale. Priorities which advanced to the second round were re-rated, with an 85% response rate. 11 priorities of ≥80% agreement were retained. The highest rated priorities included relationship between physical activity and UI; support for those with UI; causes of UI and its management; sleep and UI; and public restroom accessibility.
Findings from this study will help researchers and health-care professionals understand and address the needs of older adults with UI. Efforts should be made to translate research findings in this area and disseminate them in a medium accessible to older adults.
尿失禁是指尿液不自主漏出的症状，对老年人的生活质量有重大影响。大多数尿失禁研究由研究人员主导，缺乏患者视角。这项定性研究的目的是从老年人的角度制定一个研究议程，以解决他们的问题并改善他们管理尿失禁的体验。
采用基于社区的参与性研究框架，招募了八名患有尿失禁的老年人组成咨询小组加入研究团队。开展了一个初始焦点小组以了解他们的研究需求。运用名义小组技术使主题达到饱和，并对数据进行了主题分析。采用德尔菲共识方法，与咨询小组合作编制了一份包含20项未来尿失禁研究和教育重点的全国在线调查问卷。
59名患有尿失禁的老年人对每项重点进行了李克特量表评分。进入第二轮的重点再次进行评分，回复率为85%。保留了11项达成≥80%共识的重点。评分最高的重点包括身体活动与尿失禁之间的关系；对尿失禁患者的支持；尿失禁的病因及其管理；睡眠与尿失禁；以及公共卫生间的可达性。
本研究结果将有助于研究人员和医疗保健专业人员了解并满足患有尿失禁的老年人的需求。应努力转化该领域的研究结果，并以老年人可获取的媒介进行传播。
