Suppr超能文献

[依据《残疾人权利公约》制定的涉及精神残疾者的研究伦理标准:一项提案 根据《残疾人权利公约》制定的针对智力残疾者的研究伦理原则:一项提案]

[Ethical standards for research involving persons with mental disabilities pursuant to the Convention on the Rights of Persons with Disabilities: a proposalPrincípios éticos para pesquisas com pessoas com deficiência intelectual de acordo com a Convenção sobre os Direitos das Pessoas com Deficiência: uma proposta].

作者信息

Carracedo Sarah, Aguilera Bernardo, Constantino Renato

机构信息

Pontificia Universidad Católica del Perú, Lima, Perú. Pontificia Universidad Católica del Perú Lima Perú.

Facultad de Medicina y Ciencia, Universidad San Sebastián, Santiago, Chile. Facultad de Medicina y Ciencia Universidad San Sebastián Santiago Chile.

出版信息

Rev Panam Salud Publica. 2024 Dec 4;48:e126. doi: 10.26633/RPSP.2024.126. eCollection 2024.

Abstract

International ethical standards for research involving persons who have diminished decision-making capacity allow for delegation of the decision to participate in research to a representative who can act as a surrogate decision-maker. However, this approach has been questioned by the Convention on the Rights of Persons with Disabilities (CRPD), according to which all persons with disabilities, regardless of their mental or neurological condition, always have universal legal capacity to make decisions. The incompatibility between ethical standards and the CRPD is clear and impacts the conduct of research involving people with mental disabilities, which is essential for the improvement of their health and well-being. This article advances a proposal that seeks to reconcile the CRPD with ethical standards for informed consent processes in research and provides practical recommendations, especially for Latin American countries that still face challenges in implementing the CRPD in the research field.

摘要

涉及决策能力减弱者的研究的国际伦理标准允许将参与研究的决策权委托给能够担任替代决策者的代表。然而,《残疾人权利公约》(CRPD)对这种做法提出了质疑,根据该公约,所有残疾人,无论其精神或神经状况如何,始终具有做出决策的普遍法律能力。伦理标准与《残疾人权利公约》之间的不相容性显而易见,并影响到涉及精神残疾者的研究的开展,而这类研究对于改善他们的健康和福祉至关重要。本文提出了一项建议,旨在使《残疾人权利公约》与研究中知情同意程序的伦理标准相协调,并提供切实可行的建议,特别是针对那些在研究领域实施《残疾人权利公约》仍面临挑战的拉丁美洲国家。

相似文献

3
Governance of research involving people with psychosocial disabilities.涉及心理社会残疾者的研究治理。
Wellcome Open Res. 2023 Jun 2;8:231. doi: 10.12688/wellcomeopenres.19279.1. eCollection 2023.

本文引用的文献

1
Mental health research goals and the National Institute for Health Research.心理健康研究目标与英国国家卫生研究院
J Ment Health. 2023 Dec;32(6):1008. doi: 10.1080/09638237.2021.1898555. Epub 2021 May 9.
3
Surveying the Geneva impasse: Coercive care and human rights.审视日内瓦僵局:强制性护理与人权。
Int J Law Psychiatry. 2019 May-Jun;64:117-128. doi: 10.1016/j.ijlp.2019.03.001. Epub 2019 Mar 20.
8
Capacity issues and decision-making in dementia.痴呆症中的能力问题与决策制定
Ann Indian Acad Neurol. 2016 Oct;19(Suppl 1):S34-S39. doi: 10.4103/0972-2327.192890.

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验