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利用转化科学效益模型衡量公平性的差距与机遇:美国印第安人和阿拉斯加原住民糖尿病转化研究中心的建议

Gaps and opportunities for measuring equity with the Translational Science Benefits Model: Recommendations from the Center for American Indian and Alaska Native Diabetes Translation Research.

作者信息

Huebschmann Amy G, Brega Angela G, Stotz Sarah A, Shane Aliassa L, King Roxanna, Jernigan Valarie Blue Bird, Clyma Kaylee R, Goins R Turner, Ferguson Gary L, Parker Tassy, Tsosie Nathania, Mumby Sara J, Manson Spero M, Fort Meredith P

机构信息

Division of General Internal Medicine, University of Colorado School of Medicine, Center for American Indian and Alaska Native Diabetes Translation Research (CAIANDTR), Ludeman Family Center for Women's Health Research, Adult and Child Center for Outcomes Research and Delivery Science, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.

Centers for American Indian and Alaska Native Health, Colorado School of Public Health, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.

出版信息

J Clin Transl Sci. 2024 Oct 24;8(1):e206. doi: 10.1017/cts.2024.638. eCollection 2024.

DOI:
10.1017/cts.2024.638
PMID:39655025
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11626608/
Abstract

Translational research needs to show value through impact on measures that matter to the public, including health and societal benefits. To this end, the Translational Science Benefits Model (TSBM) identified four categories of impact: Clinical, Community, Economic, and Policy. However, TSBM offers limited guidance on how these areas of impact relate to equity. Central to the structure of our Center for American Indian and Alaska Native Diabetes Translation Research are seven regional, independent Satellite Centers dedicated to community-engaged research. Drawing on our collective experience, we provide empirical evidence about how TSBM applies to equity-focused research that centers community partnerships and recognizes Indigenous knowledge. For this special issue - "Advancing Understanding and Use of Impact Measures in Implementation Science" - our objective is to describe and critically evaluate gaps in the fit of TSBM as an evaluation approach with sensitivity to health equity issues. Accordingly, we suggest refinements to the original TSBM Logic model to add: 1) community representation as an indicator of providing community partners "a seat at the table" across the research life cycle to generate solutions (innovations) that influence equity and to prioritize what to evaluate, and 2) assessments of the representativeness of the measured outcomes and benefits.

摘要

转化研究需要通过对公众重要的指标产生影响来展现其价值,这些指标包括健康和社会效益。为此,转化科学效益模型(TSBM)确定了四类影响:临床、社区、经济和政策。然而,TSBM在这些影响领域与公平性的关系方面提供的指导有限。我们的美国印第安人和阿拉斯加原住民糖尿病转化研究中心的核心结构是七个区域独立的卫星中心,致力于社区参与研究。借鉴我们的集体经验,我们提供了关于TSBM如何应用于以公平为重点、以社区伙伴关系为中心并认可本土知识的研究的实证证据。对于本期特刊——“推进对实施科学中影响指标的理解和应用”——我们的目标是描述并批判性地评估TSBM作为一种评估方法在适应健康公平问题方面存在的差距。因此,我们建议对原始的TSBM逻辑模型进行改进,增加:1)社区代表性,作为在整个研究生命周期中为社区伙伴提供“参与机会”以产生影响公平性的解决方案(创新)并确定评估重点的指标;2)对所测量结果和效益的代表性进行评估。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e356/11626608/e98606c15642/S2059866124006381_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e356/11626608/647d29a21e48/S2059866124006381_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e356/11626608/899f8a783971/S2059866124006381_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e356/11626608/e98606c15642/S2059866124006381_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e356/11626608/647d29a21e48/S2059866124006381_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e356/11626608/899f8a783971/S2059866124006381_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e356/11626608/e98606c15642/S2059866124006381_fig3.jpg

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本文引用的文献

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Adapting the Translational Science Benefits Model to improve health and advance health equity in diabetes: The Centers for Diabetes Translation Research Impact Framework.调整转化科学效益模型以改善糖尿病健康状况并促进健康公平:糖尿病转化研究影响框架中心
J Clin Transl Sci. 2024 Sep 23;8(1):e131. doi: 10.1017/cts.2024.580. eCollection 2024.
2
Cultural tailoring advance care planning for an American Indian community: make your wishes about you.为美国印第安人社区量身定制的预先医疗护理计划:说出你对自己的愿望。
Ethn Health. 2024 Nov;29(8):908-923. doi: 10.1080/13557858.2024.2401830. Epub 2024 Sep 18.
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利用参与式实施科学促进健康公平。
Annu Rev Public Health. 2024 May;45(1):47-67. doi: 10.1146/annurev-publhealth-060722-024251. Epub 2024 Apr 3.
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Health Equity Impact Assessment (HEIA) reporting tool: developing a checklist for policymakers.健康公平影响评估(HEIA)报告工具:为政策制定者制定检查表。
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Food Sovereignty as a Path to Health Equity for Indigenous Communities: Introduction to the Focus Issue.食物主权:土著社区实现健康公平的途径:焦点问题介绍
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Applying an equity lens to assess context and implementation in public health and health services research and practice using the PRISM framework.运用公平视角,使用PRISM框架评估公共卫生、卫生服务研究及实践中的背景与实施情况。
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