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痴呆症患者照护背景下技术使用的观点:定性访谈研究

Perspectives on Technology Use in the Context of Caregiving for Persons With Dementia: Qualitative Interview Study.

作者信息

Grewal Karl S, Gowda-Sookochoff Rory, Peacock Shelley, Cammer Allison, McWilliams Lachlan A, Spiteri Raymond J, Haase Kristen R, Harrison Mary, Holtslander Lorraine, MacRae Rhoda, Michael Joanne, Green Shoshana, O'Connell Megan E

机构信息

Department of Psychology and Health Studies, College of Arts and Science, University of Saskatchewan, Sasktoon, SK, Canada.

College of Nursing, University of Saskatchewan, Sasktoon, SK, Canada.

出版信息

JMIR Form Res. 2024 Dec 13;8:e63041. doi: 10.2196/63041.

Abstract

BACKGROUND

Examining ways to support persons with dementia and their caregivers to help minimize the disease's impact on individuals, families, and society is critical. One emerging avenue for support is technology (eg, smartphones and smart homes).

OBJECTIVE

Given the increasing presence of technology in caregiving, it is pertinent to appreciate whether and how technology can be most useful to a care partner's everyday life. This study aims to further understand care partner technology use, attitudes, and the potential role of off-the-shelf technologies (eg, smartphones and smart homes) in supporting caregiving from the perspective of care partners for persons with dementia.

METHODS

We conducted a telephone cross-sectional survey using random digit dialing with 67 self-identified care partners of persons with dementia across one Canadian province. Participants were asked about attitudes toward technology, barriers to and facilitators for technology use, technology use with caregiving, and demographic information. Eight open-ended questions were analyzed using content analysis; 2 closed-ended questions about comfort with and helpfulness of technology (rated on a scale of 1 to 10) were analyzed with frequencies. From these data, an in-depth semistructured interview was created, and 10 (15%) randomly sampled care partners from the initial collection of 67 care partners were interviewed approximately 1 year later, with responses analyzed using content analysis.

RESULTS

Frequency analysis rated on a scale of 1 to 10 suggested that care partners were comfortable with technology (wearable technology mean 7.94, SD 2.02; smart home technology mean 6.94, SD 2.09), although they rated the helpfulness of technology less strongly (mean 5.02, SD 2.85). Qualitatively, care partners described using technology for functional tasks and some caregiving. Barriers to technology use included cost, lack of knowledge, security or privacy concerns, and undesirable features of technology. Facilitators included access to support and the presence of desirable features. Some care partners described merging technology with caregiving and reported subsequent benefits. Others stated that technology could not be adopted for caregiving due to the degree of impairment, fear of negative consequences for the person living with dementia, or due to incongruity with the caregiving philosophy. Furthermore, care partners noted that their technology use either increased or was unchanged as they moved through the COVID-19 pandemic.

CONCLUSIONS

The 2 analyses were conducted separately, but there was notable overlap in the data, suggesting temporal stability of identified content. Both analyses suggested care partners' relative comfort with technology and its use, but other care partners noted concerns about integrating technology and caregiving. Care partners' reports of increased technology use throughout the COVID-19 pandemic may also suggest that the pandemic impacted their perceptions of the usefulness of technology, being influenced by the requirements of their reality. Future investigations should examine how to support care partners in adopting relevant technology.

摘要

背景

研究如何支持痴呆症患者及其护理人员,以尽量减少该疾病对个人、家庭和社会的影响至关重要。一个新兴的支持途径是技术(如智能手机和智能家居)。

目的

鉴于技术在护理中的应用日益广泛,了解技术是否以及如何对护理伙伴的日常生活最有用是很有必要的。本研究旨在从痴呆症患者护理伙伴的角度,进一步了解护理伙伴对技术的使用、态度以及现成技术(如智能手机和智能家居)在支持护理方面的潜在作用。

方法

我们在加拿大的一个省份,通过随机数字拨号进行了一项电话横断面调查,共有67名自认为是痴呆症患者护理伙伴的人参与。参与者被问及对技术的态度、技术使用的障碍和促进因素、与护理相关的技术使用情况以及人口统计学信息。对八个开放式问题进行了内容分析;对两个关于技术舒适度和有用性的封闭式问题(评分从1到10)进行了频率分析。根据这些数据,创建了一个深入的半结构化访谈,并在大约一年后对最初收集的67名护理伙伴中随机抽取的10名(15%)护理伙伴进行了访谈,对回答进行了内容分析。

结果

评分从1到10的频率分析表明,护理伙伴对技术感到满意(可穿戴技术平均分为7.94,标准差为2.02;智能家居技术平均分为6.94,标准差为2.09),尽管他们对技术有用性的评分较低(平均分为5.02,标准差为2.85)。从定性角度来看,护理伙伴描述了使用技术来完成功能性任务和一些护理工作。技术使用的障碍包括成本、知识缺乏、安全或隐私担忧以及技术的不良特性。促进因素包括获得支持和技术具有理想的特性。一些护理伙伴描述了将技术与护理相结合并报告了随后的益处。其他人表示,由于痴呆症患者的受损程度、担心对痴呆症患者产生负面后果或与护理理念不一致,无法将技术用于护理。此外,护理伙伴指出,在经历新冠疫情期间,他们对技术的使用要么增加了,要么没有变化。

结论

两项分析是分别进行的,但数据中有明显的重叠,表明所确定内容的时间稳定性。两项分析都表明护理伙伴对技术及其使用相对满意,但其他护理伙伴指出了对技术与护理相结合的担忧。护理伙伴报告在整个新冠疫情期间技术使用增加,这也可能表明疫情影响了他们对技术有用性的看法,受到现实需求的影响。未来的调查应研究如何支持护理伙伴采用相关技术。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/91c6/11681293/9670e5e514f8/formative_v8i1e63041_fig1.jpg

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