Millar Josie F A, Higson-Sweeney Nina, Jenkins Tom A, Waites Erin F, Minns Sophie
Department of Psychology, University of Bath, 10 West 3.25, BA2 7AY, Bath, UK.
BMC Psychiatry. 2024 Dec 18;24(1):906. doi: 10.1186/s12888-024-06355-1.
Co-production involves researchers, practitioners and people with lived experience working in a collaborative manner, with shared power. The potential benefits of co-production are well documented. However, there is little research describing the experience of having been involved in co-production from the perspective of Experts By Lived Experience (EBLE). The aim of the present study is to explore the experiences of EBLE of obsessive-compulsive disorder (OCD) on their involvement in co-producing a blended intervention to prevent relapse for OCD.
Five EBLE took part in semi-structured interviews enquiring about their experiences of co-producing a relapse prevention intervention. Reflexive thematic analysis was used to analyse the data.
Four themes were developed: (1) Welcome but unexpected therapeutic benefits; (2) The parameters of a safe space; (3) Genuine co-production brings meaningful change; and (4) Navigating the challenging terrain of co-production.
Overall, EBLE reported their involvement in the co-production process to have had positive impacts on both the development of the intervention and their own personal recovery journey. EBLE valued the safety created within the group, and the importance this had for allowing them to speak open and honestly about their experiences and the difficulties that can arise with the nature of the work.
共同生产涉及研究人员、从业者以及有实际生活经验的人以协作的方式共同工作，并共享权力。共同生产的潜在益处已有充分记载。然而，从有实际生活经验的专家（EBLE）的角度描述参与共同生产的经历的研究却很少。本研究的目的是探讨强迫症（OCD）患者的EBLE参与共同制定混合干预措施以预防强迫症复发的经历。
五名EBLE参与了半结构化访谈，询问他们共同制定复发预防干预措施的经历。采用反思性主题分析来分析数据。
形成了四个主题：（1）受欢迎但意想不到的治疗益处；（2）安全空间的参数；（3）真正的共同生产带来有意义的改变；（4）在共同生产的挑战性领域中前行。
总体而言，EBLE报告称他们参与共同生产过程对干预措施的制定以及他们自己的个人康复历程都产生了积极影响。EBLE重视团队中营造的安全感，以及这对于让他们能够坦诚地谈论自己的经历以及工作性质可能带来的困难的重要性。
