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让曼尼托巴省的红河梅蒂斯族家庭参与儿童健康资源开发——一项定性研究的结果

Engaging Red River Métis families in Manitoba in the development of child health resources - findings from a qualitative study.

作者信息

Knisley Lisa, Driedger S Michelle, Hartling Lisa, Chartrand Frances, Sanguins Julianne, Scott Shannon D

机构信息

Children's Hospital Research Institute of Manitoba, Winnipeg, Canada.

Faculty of Nursing, University of Alberta, Edmonton, Canada.

出版信息

Res Involv Engagem. 2024 Dec 18;10(1):128. doi: 10.1186/s40900-024-00659-y.

Abstract

BACKGROUND

Most research that includes Red River Métis tends to be pan-Indigenous. Grouping Métis with First Nations and Inuit can diminish their unique and diverse experiences, as well as distinctions-based approaches. Taking a step toward addressing this problem, the Manitoba Métis Federation (MMF; the national government of the Red River Métis) invited researchers within the Canadian network Translating Emergency Knowledge for Kids to partner in this research, which focuses on understanding engagement strategies that can help expose Red River Métis parents to child health research opportunities and build trust and transparency amongst research partners and participants.

METHODS

A qualitative descriptive approach underpinned by a participatory paradigm guided this study. Semi-structured interviews were conducted with 19 Red River Métis parents and Elders via Zoom or telephone. An inductive thematic analysis approach was used to explore patterns and themes across the data.

RESULTS

Analysis generated four themes: (a) show me why you are here; (b) make it easier for me to take part; (c) create welcoming spaces; and (d) it should be a give and take experience. Parents emphasized the importance of kinship and personal connections, and said they want to hear about child health study opportunities from trusted organizations. They want researchers to be transparent about their research motivations and to offer multiple ways to participate to help them fit research into their busy lives. Relational approaches within the research process (e.g., creating informal/welcoming environments, gathering over food, fostering shared learning/creative opportunities) are prominent in the findings.

CONCLUSION

There is a dearth of research focused on the distinct experiences of Red River Métis families. Engaging Red River Métis parents early in the research process will help incorporate their preferences and perspectives into the design of a larger project to adapt child health resources. More training is needed to help researchers improve their abilities to engage in self-reflection, listen, recognize power relationships, and demonstrate trust and transparency in each research interaction. It is only through respectful and successful engagement that child health research can be relevant, applicable and positively impact Red River Métis children, families and communities.

摘要

背景

大多数纳入红河梅蒂斯人的研究往往是泛原住民的。将梅蒂斯人与第一民族和因纽特人归为一类可能会淡化他们独特而多样的经历,以及基于差异的研究方法。为解决这一问题,马尼托巴梅蒂斯联合会(MMF;红河梅蒂斯人的全国性政府组织)邀请了加拿大“为儿童翻译应急知识”网络中的研究人员参与这项研究,该研究重点在于了解有助于让红河梅蒂斯族父母接触儿童健康研究机会,并在研究伙伴和参与者之间建立信任与透明度的参与策略。

方法

本研究采用以参与式范式为基础的定性描述方法。通过Zoom或电话对19位红河梅蒂斯族父母和长者进行了半结构化访谈。采用归纳主题分析法来探究数据中的模式和主题。

结果

分析得出了四个主题:(a)向我展示你为何来此;(b)让我更轻松地参与;(c)营造友好氛围;(d)这应该是一种互利的体验。父母们强调了亲属关系和个人联系的重要性,并表示他们希望从可信赖的组织那里了解儿童健康研究机会。他们希望研究人员对研究动机保持透明,并提供多种参与方式,以帮助他们将研究融入忙碌的生活。研究过程中的关系方法(例如,营造非正式/友好的环境、边吃边交流、促进共同学习/创造机会)在研究结果中很突出。

结论

针对红河梅蒂斯族家庭独特经历的研究匮乏。在研究过程早期让红河梅蒂斯族父母参与进来,将有助于把他们的偏好和观点纳入一个更大项目的设计中,以调整儿童健康资源。需要更多培训来帮助研究人员提高自我反思、倾听、认识权力关系以及在每次研究互动中展现信任和透明度的能力。只有通过尊重且成功的参与,儿童健康研究才能具有相关性、适用性,并对红河梅蒂斯族儿童、家庭和社区产生积极影响。

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