de Mortier Chloé A, Klein Haneveld Mirthe J, Verstegen Daniëlle M L, van Mastrigt Ghislaine A P G, Paulus Aggie T G, Evers Silvia M A A, Dreesens Dunja H H, Majoie Marian H J M
Faculty of Health, Medicine and Life Sciences (FHML), Care and Public Health Research Institute (CAPHRI), Department of Health Services Research, Maastricht University, Maastricht, The Netherlands.
Faculty of Health, Medicine and Life Sciences (FHML), School of Health Professions Education (SHE), Maastricht University, Maastricht, The Netherlands.
J Eval Clin Pract. 2025 Feb;31(1):e14274. doi: 10.1111/jep.14274.
The development of clinical practice guidelines (CPG) has evolved into a rigorous and complex process. There is a need for training of CPG developers including methodologists, panel members and patient representatives. This study explored the educational needs and experiences of CPG developers, with specific attention to the patient perspective and economic considerations.
An anonymised mixed-method survey was distributed among CPG developers and panel members in the Netherlands. The survey, developed in collaboration with Dutch CPG development organisations and patient organisations, aimed to capture insights into the developers' roles, training needs, and the incorporation of economic considerations and patient perspectives in CPG development. Data analysis involved qualitative content analysis and descriptive quantitative analysis.
A total of 271 responses were analysed. Respondents described role-specific tasks and tasks overlapping between roles. Experience, guidance, and training influenced the respondents' feeling of preparedness for their tasks. Respondents expressed the need for content-related training, including CPG development methodology. They also raised the importance of process-related topics in training, such as the inclusion of different perspectives and responsibilities during CPG development. About half of the respondents (46%) indicated that economic considerations were included in their CPGs, however, there was no uniformity in approach. The patient perspective was included by 89% of the respondents, also in varying manners. Overall, respondents underscored the importance of both topics in CPG development (training) to ensure a future-proof healthcare system.
This study underscores the importance of tailored CPG development training programmes addressing the specific competencies required for the different roles in CPG development. Thereby, recognising a holistic approach encompassing both content- and process-related aspects. Addressing economic considerations and the patient perspective in training will contribute to CPGs that support a patient-centred and sustainable healthcare system.
临床实践指南(CPG)的制定已发展成为一个严谨且复杂的过程。需要对CPG制定者进行培训,包括方法学家、专家组成员和患者代表。本研究探讨了CPG制定者的教育需求和经验,特别关注患者视角和经济考量。
在荷兰,向CPG制定者和专家组成员发放了一份匿名混合方法调查问卷。该问卷是与荷兰CPG制定组织和患者组织合作开发的,旨在深入了解制定者的角色、培训需求,以及在CPG制定过程中经济考量和患者视角的纳入情况。数据分析包括定性内容分析和描述性定量分析。
共分析了271份回复。受访者描述了特定角色的任务以及角色之间重叠的任务。经验、指导和培训影响了受访者对其任务准备程度的感受。受访者表示需要与内容相关的培训,包括CPG制定方法。他们还强调了培训中与过程相关主题的重要性,例如在CPG制定过程中纳入不同的视角和职责。约一半的受访者(46%)表示他们的CPG纳入了经济考量,然而,方法并不统一。89%的受访者纳入了患者视角,方式也各不相同。总体而言,受访者强调了这两个主题在CPG制定(培训)中的重要性,以确保医疗保健系统的未来可持续性。
本研究强调了量身定制CPG制定培训计划的重要性,该计划应针对CPG制定中不同角色所需的特定能力。从而认识到一种涵盖与内容和过程相关方面的整体方法。在培训中考虑经济考量和患者视角将有助于制定支持以患者为中心且可持续的医疗保健系统的CPG。