Hale Elijah W, Taylor Aryn, Elton Marlee, Honsbruch Melanie, Rosenberg Cordelia Robinson, Sanders Jessica Solomon
School of Medicine, University of Colorado, Aurora, CO 80045, USA.
University of Colorado School of Medicine, Department of Pediatrics, Section of Developmental Pediatrics, JFK Partners, USA.
Health Care Transit. 2024 Feb 27;2:100048. doi: 10.1016/j.hctj.2024.100048. eCollection 2024.
Pilot a clinical model and study to learn more about how employment impacts health in children and young adults with intellectual and developmental disabilities.
As young individuals transition into adulthood, milestones such as independent living and gainful employment become paramount. However, for those with intellectual and developmental disabilities (IDD), these milestones can diverge notably from those of typically developing peers. They often confront distinct challenges, especially during shifts from pediatric to adult health care and transitioning from school to employment. Despite the positive influence of employment on quality of life, fragmented support systems create barriers to achieving this outcome. Employment is an important aspect of overall health and wellness, and more research is needed to determine how employment supports can be integrated with health care to improve certain health outcomes.
Self-determination theory and social ecological theory highlight the need for a comprehensive approach that considers both the internal needs and motivations of the individual with IDD and the external factors that influence their transition to adulthood. Based in these theories, our intervention offers an innovative blend of vocational support within a transition services framework at a large academic hospital. Our study introduces vocational support tailored for IDD youths within three health clinics.
Initial results demonstrate the technical and scheduling feasibility of integrating the intervention within existing healthcare services. The study has enrolled several participants, showing potential in technical, scheduling, economic, and operational domains. However, upcoming long-term data and comprehensive evaluation are required for a conclusive understanding of the intervention's impact.
The program integrates vocational support into transitioning individuals with IDD from childhood to adult health care services. This intervention has potential to improve the health outcomes and quality of life for individuals with IDD, which could drive broader interdisciplinary interventions.
试行一种临床模式和研究，以更多地了解就业如何影响智力和发育障碍儿童及青年的健康。
随着年轻人步入成年，诸如独立生活和有报酬的工作等里程碑变得至关重要。然而，对于那些有智力和发育障碍（IDD）的人来说，这些里程碑可能与发育正常的同龄人有显著差异。他们经常面临独特的挑战，尤其是在从儿科医疗向成人医疗的转变以及从学校向就业的过渡期间。尽管就业对生活质量有积极影响，但支离破碎的支持系统为实现这一目标设置了障碍。就业是整体健康和幸福的一个重要方面，需要更多研究来确定如何将就业支持与医疗保健相结合以改善某些健康结果。
自我决定理论和社会生态理论强调需要一种综合方法，既要考虑IDD个体的内部需求和动机，也要考虑影响他们向成年过渡的外部因素。基于这些理论，我们的干预措施在一家大型学术医院的过渡服务框架内提供了创新的职业支持组合。我们的研究在三家健康诊所引入了针对IDD青年的职业支持。
初步结果证明了将干预措施整合到现有医疗服务中的技术和时间安排可行性。该研究已招募了几名参与者，在技术、时间安排、经济和运营领域显示出潜力。然而，需要即将到来的长期数据和全面评估才能对干预措施的影响有确凿的了解。
该项目将职业支持整合到从儿童期到成人医疗服务的IDD过渡个体中。这种干预措施有可能改善IDD个体的健康结果和生活质量，这可能推动更广泛的跨学科干预。
