Almulhim Nasser Abdullah, Alojail Heba Yousef, Aljughayman Mohammed Abdullah, Almarri Fatimah Hussain, Alsultan Norah Hamad, Albash Latifah Adel, Almukhaimar Sara Khalid, Alkhamis Ali Abduljalil, Albaqshi Mohammed Abdullah, Alkhawajah Amnah Ali
College of Medicine, King Faisal University, Alahsa, Saudi Arabia.
Department of Dermatology, King Faisal University, Alahsa, Saudi Arabia.
Patient Prefer Adherence. 2024 Dec 20;18:2597-2607. doi: 10.2147/PPA.S486039. eCollection 2024.
Alopecia Areata (AA) is a complex autoimmune condition characterized by long-term inflammatory non-scarring patches of hair loss on the face, scalp, and body. Its development involves a combination of genetic, immunological, and environmental factors, making it challenging to understand and treat. This study aims to assess the awareness, beliefs, and psychological impact of patients with Alopecia Areata.
This cross-sectional study was conducted in Eastern and Central provinces of Saudi Arabia and utilized online questionnaires to evaluate knowledge, beliefs, and psychological effects of patients with Alopecia Areata. These questionnaires were distributed using social media platforms.
This study enrolled 248 patients with Alopecia Areata (AA), of whom 38.7% were aged 31-40 years and 55.2% were males. The majority were Saudis (98.4%), married (54%), and residing in the Central Region (60.1%). Nearly half (48.8%) were employed in non-medical fields, and 30.6% were vocational school graduates. Healthcare providers were the main source of AA information (52.8%), with most patients aware of AA's seriousness, curability, and quality of life impact, though many had low knowledge and experienced negative psychological effects such as shyness, anxiety, and depression.
Despite low self-rated knowledge, most patients recognized AA as serious and requiring treatment. Psychological well-being was heavily impacted by AA severity, quality of life, disease duration, and treatment efficacy. Although many patients showed improved AA status and good medication compliance, adverse psychological effects persisted, highlighting the need for larger studies to better understand and address these issues.
斑秃(AA)是一种复杂的自身免疫性疾病,其特征是面部、头皮和身体出现长期炎症性非瘢痕性脱发斑块。其发病涉及遗传、免疫和环境因素的综合作用,这使得理解和治疗该疾病具有挑战性。本研究旨在评估斑秃患者的认知、信念和心理影响。
这项横断面研究在沙特阿拉伯东部和中部省份进行,利用在线问卷评估斑秃患者的知识、信念和心理影响。这些问卷通过社交媒体平台分发。
本研究纳入了248例斑秃患者,其中38.7%的患者年龄在31 - 40岁之间,55.2%为男性。大多数患者是沙特人(98.4%),已婚(54%),居住在中部地区(60.1%)。近一半(48.8%)的患者受雇于非医疗领域,30.6%为职业学校毕业生。医疗保健提供者是斑秃信息的主要来源(52.8%),大多数患者意识到斑秃的严重性、可治愈性以及对生活质量的影响,尽管许多患者知识水平较低,并经历了诸如害羞、焦虑和抑郁等负面心理影响。
尽管自我评估的知识水平较低,但大多数患者认识到斑秃病情严重且需要治疗。心理健康受到斑秃严重程度、生活质量、病程和治疗效果的严重影响。尽管许多患者的斑秃状况有所改善且药物依从性良好,但不良心理影响仍然存在,这凸显了需要进行更大规模的研究以更好地理解和解决这些问题。