Lloyd Alex, Wu Tom Chin-Han, Lucas Laura, Agunbiade Adeola, Saleh Romana, Fearon Pasco, Viding Essi
Clinical, Educational and Health Psychology, Psychology and Language Sciences University College London London UK.
Young People's Advisory Group London UK.
JCPP Adv. 2024 Dec 11;4(4):e12291. doi: 10.1002/jcv2.12291. eCollection 2024 Dec.
Involving young people with lived experience in youth mental health research is important. In recognition of the value of collaborating with experts by experience, international funders are increasingly mandating that mental health research is developed by teams that include individuals from the population of study. Yet, research into how Patient Public Involvement, specifically co-production and co-design, is implemented in youth mental health research is limited to date. The current review examined this question and identified common practices for collaborating with experts by experience in young people's mental health research. Academic databases were systematically searched for studies that had involved young people in mental health research, had described these activities, and had reported some demographic information about the experts by experience. From a total of 2130 studies that were screened, 37 studies were eligible for inclusion. The use of co-production and co-design spanned a wide range of topics, including interventions, digital support tools and psychometric studies. Interactive workshops were the primary method of engaging experts by experience, although some studies utilised interviews or focus groups. From the reviewed studies we identified common methodological practices including: Scene setting, utilising a cyclical process, ensuring appropriate engagement and recognition of the cultural context. We draw on these findings to suggest common methods for conducting co-production and co-design activities, and emphasise the importance of ensuring experts by experience are respected and safeguarded throughout their collaboration in research. We also outline areas that deserve future attention and development, and include a response from two young people aged 16-18 and their suggestions for improving and extending co-production methods.
让有实际生活经历的年轻人参与青少年心理健康研究很重要。鉴于与有经验的专家合作的价值，国际资助者越来越多地要求心理健康研究由包括研究对象群体中的个人在内的团队开展。然而，迄今为止，关于患者公众参与，特别是共同生产和共同设计，在青少年心理健康研究中如何实施的研究还很有限。当前的综述研究了这个问题，并确定了在青少年心理健康研究中与有经验的专家合作的常见做法。我们系统地检索了学术数据库，以查找那些让年轻人参与心理健康研究、描述了这些活动并报告了一些关于有经验的专家的人口统计学信息的研究。在总共筛选的2130项研究中，有37项研究符合纳入标准。共同生产和共同设计的应用涵盖了广泛的主题，包括干预措施、数字支持工具和心理测量研究。互动工作坊是让有经验的专家参与的主要方式，不过一些研究采用了访谈或焦点小组的形式。从这些综述研究中，我们确定了常见的方法实践，包括：背景设定、采用循环过程、确保适当参与并认识到文化背景。我们借鉴这些发现，提出开展共同生产和共同设计活动的常见方法，并强调在整个研究合作过程中确保有经验的专家受到尊重和保护的重要性。我们还概述了值得未来关注和发展的领域，并收录了两名16 - 18岁年轻人的回应以及他们对改进和扩展共同生产方法的建议。
