de Alcântara Mendes Josimar Antônio, Lucassen Mathijs, Adams Alex, Martin Lucy, Aicardi Christine, Woodcock Rebecca, Nielsen Emma, Townsend Ellen, Jirotka Marina
Department of Computer Science, University of Oxford, 39a St. Giles, Oxford, OX1 3LW, UK.
City, University of London, London, UK.
Res Involv Engagem. 2024 Jun 11;10(1):60. doi: 10.1186/s40900-024-00591-1.
Rather than being perceived as merely 'part of the problem', the perspectives and experiences of young people play a pivotal role in devising effective solutions for mental health challenges. Two distinct methodologies that aid in this endeavour are 'patient and public involvement' (PPI) and 'responsible research and innovation' (RRI). However, there is a tendency to conflate PPI and RRI practices, leading to ambiguity in their application. Moreover, the extent and nature of young people's involvement in mental health-related projects (namely: research, intervention, product development) employing these methodologies, and the subsequent implications thereof, remain unclear. Consequently, the proposed scoping review aims to identify and analyse literature pertaining to PPI and RRI approaches in mental health projects that engage young people in collaboration.
The selected databases will be MEDLINE, PsycINFO, PsycArticles, Scopus, Web of Science, IBBS, CINAHL (EBSCO) and ASSIA. Comprehensive searches will span from the inception of each database. A pilot test will be conducted to assess the screening criteria and data extraction form, with two authors independently reviewing titles and abstracts. Full-text articles meeting the inclusion criteria will undergo narrative syntheses, with results presented in tabular format. Feedback on the findings from a youth perspective will be sought from young people within our broader research network, namely Sprouting Minds. The review will adhere to the guidelines outlined by the Joanna Briggs Institute (JBI) and follow the PRISMA-ScR procedures. Inclusion criteria will comprise English-language, primary research peer-reviewed articles focused on Patient and Public Involvement (PPI) or Responsible Research and Innovation (RRI), examining mental health-related research processes, interventions, and products developed in collaboration with young people. Studies employing quantitative, qualitative, and mixed-methods approaches will be considered, while non-journal publications will be excluded.
The intended scoping review aims to map the literature concerning mental health-related projects that engage with young people through PPI or RRI approaches. The outcomes hold promise for enriching the participatory research domain, particularly in studies centred on young people and their mental well-being. Furthermore, by delineating potential overlaps and distinctions between PPI and RRI, the findings stand to aid mental health researchers and practitioners in making informed decisions about the most suitable approach for their projects when partnering with young individuals.
Open Science Framework (registration: DOI https://doi.org/10.17605/OSF.IO/N4EDB ).
年轻人的观点和经历并非仅仅被视为“问题的一部分”，而是在为心理健康挑战设计有效解决方案中发挥着关键作用。有助于这一努力的两种不同方法是“患者及公众参与”（PPI）和“负责任的研究与创新”（RRI）。然而，存在将PPI和RRI实践混为一谈的趋势，导致其应用中存在模糊性。此外，年轻人参与采用这些方法的心理健康相关项目（即研究、干预、产品开发）的程度和性质，以及由此产生的影响仍不明确。因此，拟进行的范围综述旨在识别和分析与通过合作让年轻人参与的心理健康项目中的PPI和RRI方法相关的文献。
选定的数据库将包括MEDLINE、PsycINFO、PsycArticles、Scopus、Web of Science、IBBS、CINAHL（EBSCO）和ASSIA。全面检索将涵盖每个数据库的创建之初。将进行预试验以评估筛选标准和数据提取表，由两位作者独立审查标题和摘要。符合纳入标准的全文文章将进行叙述性综合分析，结果以表格形式呈现。将从我们更广泛的研究网络“萌芽心灵”中的年轻人那里寻求从青年视角对研究结果的反馈。该综述将遵循乔安娜·布里格斯研究所（JBI）概述的指南并遵循PRISMA-ScR程序。纳入标准将包括以英语撰写的、经同行评审的初级研究文章，重点关注患者及公众参与（PPI）或负责任的研究与创新（RRI），研究与年轻人合作开展的心理健康相关研究过程、干预措施和产品。将考虑采用定量、定性和混合方法的研究，同时排除非期刊出版物。
拟进行的范围综述旨在梳理与通过PPI或RRI方法让年轻人参与的心理健康相关项目的文献。研究结果有望丰富参与式研究领域，特别是在以年轻人及其心理健康为中心的研究中。此外，通过描绘PPI和RRI之间潜在的重叠和区别，研究结果有助于心理健康研究人员和从业者在与年轻人合作开展项目时，就最适合其项目的方法做出明智决策。
开放科学框架（注册：DOI https://doi.org/10.17605/OSF.IO/N4EDB ）
