Alabdulmohsen Dalal Mahmoud, Alfuhaydi Sarah Khalid, Al Saloum Abdullah Mohamed, Alomair Bayan, Alhindi Mohannad Yousuf, Alsulami Ruba Yosof, Alsalman Mortadah Hadi
Department of Medicine, College of Medicine, King Faisal University, Alahsa, Saudi Arabia.
Department of Medicine, King Fahad Medical City, Riyadh, Saudi Arabia.
Int J Gen Med. 2024 Dec 27;17:6487-6493. doi: 10.2147/IJGM.S495248. eCollection 2024.
Arabic is the primary language used in the Middle East, where sickle cell disease (SCD) is prevalent. This study aims to quantify Arabic web educational materials for patients with SCD and provide a descriptive standardized assessment.
This retrospective, descriptive study aimed to analyze Arabic websites on SCD through the Discern instrument and JAMA benchmark.
We evaluated the quality and reliability of 27 Arabic SCD-related websites. Regarding website content, all 27 (100%) defined sickle cell disease, whereas 25 (96.30%) and 24 (92.59%) illustrated its manifestations and treatments, respectively. However, only 12 (44.44%) discussed the prevention of the disease through premarital genetic screening and counseling. According to the Discern score, 11 (40.74%) websites were of low quality, while 16 (59.26%) were of moderate quality. On the other hand, the JAMA score reveals that only 2 (7.41%) websites were high reliability, while the majority 25 (92.59%) were low reliability. Additionally, analysis revealed a weak positive correlation between the Discern and JAMA scores (correlation coefficient of 0.19). There were no statistically significant differences in the Discern and JAMA scores between websites on the first page of the search results and those on other pages ( = 0.941 and 0.359, respectively).
Empowering patients with comprehensive knowledge about various disease aspects is a pivotal component in the effective management of SCD and, consequently, improving its outcomes. Regrettably, there is a notable scarcity of credible and high-quality written web-based health resources available in Arabic despite significant advancements in other clinical aspects of SCD. Augmenting the existing online resources in Arabic patients' native language could yield substantial enhancements in patient care across various dimensions.
阿拉伯语是中东地区使用的主要语言，而镰状细胞病（SCD）在该地区普遍流行。本研究旨在量化面向SCD患者的阿拉伯语网络教育材料，并提供描述性标准化评估。
这项回顾性描述性研究旨在通过Discern工具和《美国医学会杂志》基准来分析关于SCD的阿拉伯语网站。
我们评估了27个与阿拉伯语SCD相关网站的质量和可靠性。关于网站内容，所有27个（100%）都对镰状细胞病进行了定义，而分别有25个（96.30%）和24个（92.59%）说明了其表现和治疗方法。然而，只有12个（44.44%）讨论了通过婚前基因筛查和咨询来预防该疾病。根据Discern评分，11个（40.74%）网站质量较低，而16个（59.26%）质量中等。另一方面，《美国医学会杂志》评分显示只有2个（7.41%）网站可靠性高，而大多数25个（92.59%）可靠性低。此外，分析显示Discern评分与《美国医学会杂志》评分之间存在微弱的正相关（相关系数为0.19）。搜索结果首页的网站与其他页面的网站在Discern评分和《美国医学会杂志》评分上没有统计学显著差异（分别为 = 0.941和0.359）。
让患者全面了解疾病的各个方面是有效管理SCD并改善其治疗结果的关键组成部分。遗憾的是，尽管SCD的其他临床方面取得了重大进展，但阿拉伯语的可靠且高质量的书面网络健康资源明显匮乏。以阿拉伯语患者的母语增加现有的在线资源可以在各个层面显著改善患者护理。
