Rana Shaheen, DeGroote Nicholas P, Harris Ebonee, Lange Anna, Wasilewski-Masker Karen, Klosky James L, Wolfe Joanne, Kavalieratos Dio, Brock Katharine E
Intervention Development (S.R.), Dissemination and Implementation Shared Resource, Winship Cancer Institute of Emory University, Atlanta, GA, USA.
Aflac Cancer & Blood Disorders Center (N.P.D., A. L., K.W.M., J.L.K., K.E.B.), Children's Healthcare of Atlanta, Atlanta, GA, USA.
J Pain Symptom Manage. 2025 Apr;69(4):343-353.e4. doi: 10.1016/j.jpainsymman.2024.12.018. Epub 2024 Dec 31.
Surveyed families of children and young adults with cancer who participated in a pilot study of three coordinated telehealth visits (triad of patient/family, hospital clinician, and hospice nurse) during the first month of hospice enrollment found telehealth feasible and were highly satisfied with hospice care. The aim of this study is to further explore adult patient and caregiver perspectives on telehealth, specifically the benefits of telehealth, trade-offs with in-person appointments, and the impact on patient care and family end-of-life preparations.
This is a single-arm prospective pilot study of patients aged 0-29-with cancer initiating hospice care between 2021 and 2022 and their caregivers. Semi-structured qualitative interviews were conducted with adult patients after the first telehealth visit and with caregivers during bereavement. Traditional content analysis methods were employed to analyze the interviews.
The primary themes identified were (1) convenience and positive experiences with technology (addressing family questions and concerns, comfort of home, user-friendliness of technology), (2) benefits of coordinated appointments (improved collaboration/communication among team members and patient/caregiver understanding), (3) the positive impact of telehealth visits on care (symptom management, support, and preparation for end-of-life).
Adult patients enrolled in hospice and bereaved caregivers found coordinated telehealth visits to be beneficial, notably the convenience, comfort, time and cost savings of participating from home. Coordinated telehealth visits provide opportunities for hospice and hospital clinicians to communicate and collaborate on symptom management plans while supporting and guiding families in end-of-life preparations.
对参与临终关怀注册首月的三项协调远程医疗访视（患者/家庭、医院临床医生和临终关怀护士三方参与）试点研究的癌症患儿及青年成人家庭进行调查，发现远程医疗可行，且他们对临终关怀服务高度满意。本研究的目的是进一步探讨成年患者及其照护者对远程医疗的看法，特别是远程医疗的益处、与面对面预约相比的权衡，以及对患者护理和家庭临终准备的影响。
这是一项单臂前瞻性试点研究，研究对象为2021年至2022年间开始接受临终关怀的0至29岁癌症患者及其照护者。在首次远程医疗访视后对成年患者进行半结构化定性访谈，并在丧亲期间对照护者进行访谈。采用传统的内容分析方法对访谈进行分析。
确定的主要主题包括：（1）技术带来的便利和积极体验（解决家庭问题和担忧、在家中的舒适感、技术的用户友好性）；（2）协调预约的益处（团队成员之间更好的协作/沟通以及患者/照护者的理解）；（3）远程医疗访视对护理的积极影响（症状管理、支持和临终准备）。
参与临终关怀的成年患者和丧亲的照护者发现协调的远程医疗访视有益，特别是在家中参与带来的便利、舒适、节省时间和成本。协调的远程医疗访视为临终关怀和医院临床医生提供了就症状管理计划进行沟通和协作的机会，同时在临终准备方面支持和指导家庭。
