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一份针对脑瘫患儿的综合姑息与康复护理联合计划。

A Combined Comprehensive Palliative and Rehabilitative Care Plan for a Child With Cerebral Palsy.

作者信息

Swarnakar Raktim, Yadav Shiv L

机构信息

Physical Medicine and Rehabilitation, R. G. Kar Medical College and Hospital, Kolkata, IND.

Physical Medicine and Rehabilitation, All India Institute of Medical Sciences, New Delhi, New Delhi, IND.

出版信息

Cureus. 2024 Dec 3;16(12):e75010. doi: 10.7759/cureus.75010. eCollection 2024 Dec.

DOI:10.7759/cureus.75010
PMID:39749062
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11694156/
Abstract

Cerebral palsy (CP) is a group of neurological disorders that affect movement, muscle tone, and motor skills. Here, we present a case of an 11-year-old female patient who presented with tightness in both lower limbs, since birth, and delayed walking, accompanied by difficulty walking due to spasticity. She was diagnosed with spastic diplegic cerebral palsy. This case highlights the combined use of palliative and rehabilitative care. Developmental milestones were delayed, and she was diagnosed with CP at an early age. A comprehensive treatment plan was implemented, including physical therapy, speech therapy, and pharmacological treatment with baclofen to reduce spasticity. Non-pharmacological treatments such as neurodevelopmental therapy, biofeedback, and orthotic support were also employed. The child's rehabilitation progress included improved mobility, speech fluency, and reduced spasticity, with notable benefits in gait. Palliative care played a critical role in addressing the emotional, psychological, and social aspects of the child's condition and providing the family support, counseling, and guidance on managing the care burden. This integrated approach emphasizes the importance of early palliative care alongside rehabilitation to optimize a child's quality of life. This case highlights how a multidisciplinary approach addressing both physical and emotional needs can lead to better overall outcomes for children with cerebral palsy, improving not just mobility but also their well-being and family support system.

摘要

脑瘫(CP)是一组影响运动、肌肉张力和运动技能的神经障碍。在此,我们介绍一例11岁女性患者,她自出生以来双下肢就出现紧绷感,且走路延迟,伴有痉挛导致的行走困难。她被诊断为痉挛型双瘫脑瘫。该病例突出了姑息治疗和康复护理的联合使用。其发育里程碑延迟,且在幼年时被诊断为脑瘫。实施了综合治疗计划,包括物理治疗、言语治疗以及使用巴氯芬进行药物治疗以减轻痉挛。还采用了神经发育疗法、生物反馈和矫形支持等非药物治疗方法。该患儿的康复进展包括活动能力改善、言语流畅度提高以及痉挛减轻,在步态方面有显著改善。姑息治疗在解决患儿病情的情感、心理和社会方面问题以及为家庭提供护理负担管理方面的支持、咨询和指导方面发挥了关键作用。这种综合方法强调了早期姑息治疗与康复相结合对于优化患儿生活质量的重要性。该病例突出了一种兼顾身体和情感需求的多学科方法如何能为脑瘫患儿带来更好的总体结果,不仅改善其活动能力,还能提升其幸福感和家庭支持系统。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d54/11694156/6806630ebbde/cureus-0016-00000075010-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d54/11694156/6806630ebbde/cureus-0016-00000075010-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d54/11694156/6806630ebbde/cureus-0016-00000075010-i01.jpg

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本文引用的文献

1
Effect of family-centered care interventions on well-being of caregivers of children with cerebral palsy: a systematic review.家庭为中心的护理干预对脑瘫患儿照顾者幸福感的影响:系统评价。
F1000Res. 2024 May 29;12:790. doi: 10.12688/f1000research.133314.2. eCollection 2023.
2
Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families.为患有严重神经功能障碍的儿童及其家庭提供儿科姑息治疗。
J Pain Symptom Manage. 2021 Sep;62(3):662-667. doi: 10.1016/j.jpainsymman.2021.01.008. Epub 2021 Jan 22.
3
Cerebral palsy in children: a clinical overview.
儿童脑性瘫痪:临床概述
Transl Pediatr. 2020 Feb;9(Suppl 1):S125-S135. doi: 10.21037/tp.2020.01.01.
4
Cerebral Palsy: An Overview.脑性瘫痪:概述。
Am Fam Physician. 2020 Feb 15;101(4):213-220.
5
Evidence-based Approach to Physical Therapy in Cerebral Palsy.脑瘫物理治疗的循证方法
Indian J Orthop. 2019 Jan-Feb;53(1):20-34. doi: 10.4103/ortho.IJOrtho_241_17.
6
Integrating Function-Directed Treatments into Palliative Care.将功能导向治疗整合到姑息治疗中。
PM R. 2017 Sep;9(9S2):S335-S346. doi: 10.1016/j.pmrj.2017.07.073.
7
Cerebral palsy: a multidisciplinary, integrated approach is essential.脑瘫:多学科综合治疗方法至关重要。
Lancet Glob Health. 2017 Apr;5(4):e401. doi: 10.1016/S2214-109X(17)30082-7.
8
Multidisciplinary rehabilitation for patients with cerebral palsy: improving long-term care.脑瘫患者的多学科康复治疗:改善长期护理。
J Multidiscip Healthc. 2016 Sep 22;9:455-462. doi: 10.2147/JMDH.S88782. eCollection 2016.
9
Cerebral palsy: clinical care and neurological rehabilitation.脑性瘫痪:临床护理与神经康复。
Lancet Neurol. 2011 Sep;10(9):844-52. doi: 10.1016/S1474-4422(11)70176-4.
10
Paediatric palliative care: theory to practice.儿童姑息治疗:从理论到实践
Indian J Palliat Care. 2011 Jan;17(Suppl):S52-60. doi: 10.4103/0973-1075.76244.