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美国照顾患有智力发育障碍的重症监护病房患者的护士:一项使用西方故事弧的诠释主义叙事分析

Nurses Caring for ICU Patients With Intellectual Developmental Disabilities in the United States: An Interpretivist Narrative Analysis Using Western Story Arcs.

作者信息

Watson Adrianna Lorraine, Sutton-Clark Gabby, Prescott Sara

机构信息

College of Nursing, Brigham Young University, Provo, Utah, USA.

College of Nursing, Brigham Young University, Provo, USA.

出版信息

J Adv Nurs. 2025 Aug;81(8):5014-5026. doi: 10.1111/jan.16715. Epub 2025 Jan 3.

DOI:10.1111/jan.16715
PMID:39749873
Abstract

BACKGROUND

Understanding ICU nurses' experiences in caring for patients with intellectual developmental disabilities is crucial. Insights can inform supportive measures and training programs to enhance nurse well-being and patient population-specific outcomes.

OBJECTIVE

The primary objective of this study was to explore and understand the lived experiences of nurses caring for patients with intellectual developmental disabilities.

DESIGN

This narrative study employed a research design focusing on ICU nurse storytelling. Registered nurses from ICU settings (n = 49) in the United States participated. Data were collected from January 2024 through April 2024 via semi-structured interviews over an online audiovisual recorded platform. Transcripts were analysed using Christopher Booker's theory of the seven basic plots (Overcoming the Monster, Rags to Riches, The Quest, Voyage and Return, Comedy, Tragedy, and Rebirth) to identify emerging themes in the data.

RESULTS

Story arcs revealed each type of narrative arc apart from comedy, suggesting that ICU nurse experiences of caring for patients with IDD are widely varied and encompass a full range of human expression and experience. Themes spanning these arcs included (1) The Journey of Revisioning ICU Care and (2) Finding Strength to Champion Patient Rights. Findings suggest that ICU nurses consistently experienced the key elements in Finding Strength to Champion Patient Rights but that the key elements of The Journey of Revisioning ICU Care were less widely experienced.

CONCLUSION

Tailored support and training programs can enhance nurses' ability to provide effective care to this patient population. Insights hold practical implications for nursing education, clinical practice, and policy development.

RELEVANCE TO CLINICAL PRACTICE

Findings suggest additional training for nurses will benefit patient outcomes and nurse satisfaction. Through exploring unique challenges and emotional burdens faced by nurses, healthcare organisations can develop supportive measures that foster a more caring and effective healing environment. Policy changes can lead to improved patient outcomes, greater nurse satisfaction, and a more inclusive healthcare system that recognises and addresses the needs of vulnerable populations.

PATIENT OR PUBLIC CONTRIBUTION

No patient or public contribution. This study focused on the lived experiences of ICU nurses rather than direct patient or public involvement. The research design and data collection were centred on professional narratives from nursing staff, which did not necessitate input from patients or the public for the objectives set forth.

摘要

背景

了解重症监护病房(ICU)护士护理智力发育障碍患者的经历至关重要。相关见解可为支持措施和培训计划提供依据,以提高护士的幸福感和针对特定患者群体的护理效果。

目的

本研究的主要目的是探索和了解护理智力发育障碍患者的护士的实际经历。

设计

这项叙事研究采用了以ICU护士讲故事为重点的研究设计。美国ICU病房的注册护士(n = 49)参与了研究。2024年1月至2024年4月期间,通过在线视听录制平台进行半结构化访谈收集数据。使用克里斯托弗·布克的七种基本情节理论(战胜怪物、白手起家、探索、航行与回归、喜剧、悲剧和重生)对访谈记录进行分析,以确定数据中出现的主题。

结果

故事弧线揭示了除喜剧之外的每种叙事弧线,这表明ICU护士护理智力发育障碍患者的经历广泛多样,涵盖了人类的各种表达和体验。贯穿这些弧线的主题包括:(1)重新审视ICU护理的历程;(2)为维护患者权利寻找力量。研究结果表明,ICU护士在“为维护患者权利寻找力量”方面始终经历着关键要素,但在“重新审视ICU护理的历程”中的关键要素体验较少。

结论

量身定制的支持和培训计划可以提高护士为这一患者群体提供有效护理的能力。这些见解对护理教育、临床实践和政策制定具有实际意义。

与临床实践的相关性

研究结果表明,为护士提供额外培训将有利于患者护理效果和护士满意度。通过探索护士面临的独特挑战和情感负担,医疗保健机构可以制定支持措施,营造更具关怀性和有效性的治疗环境。政策变化可以改善患者护理效果,提高护士满意度,并建立一个更具包容性的医疗保健系统,该系统能够认识到并满足弱势群体的需求。

患者或公众参与

无患者或公众参与。本研究关注的是ICU护士的实际经历,而非患者或公众的直接参与。研究设计和数据收集以护理人员的专业叙述为中心,对于既定目标而言,无需患者或公众的投入。

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