Polat Yunus Halil, Cankurtaran Rasim Eren
Department of Gastroenterology, Ankara Training and Research Hospital, Ankara, Turkey.
Department of Gastroenterology, Ankara Etlik City Hospital, Ankara, Turkey.
JMIR Infodemiology. 2025 Feb 4;5:e58615. doi: 10.2196/58615.
YouTube is an increasingly used platform for medical information. However, the reliability and validity of health-related information on celiac disease (CD) on YouTube have not been determined.
This study aimed to analyze the reliability and validity of CD-related YouTube videos.
On November 15, 2023, a search was performed on YouTube using the keyword "celiac disease." This search resulted in a selection of videos, which were then reviewed by 2 separate evaluators for content, origin, and specific features. The evaluators assessed the reliability and quality of these videos using a modified DISCERN (mDISCERN) score, the Journal of the American Medical Association (JAMA) benchmark criteria score, the usefulness score, video power index (VPI), and the Global Quality Scale (GQS) score.
In the analysis of 120 initially screened CD videos, 85 met the criteria for inclusion in the study after certain videos were excluded based on predefined criteria. While the duration of the videos uploaded by health care professionals was significantly longer than the other group (P=.009), it was concluded that the median scores for mDISCERN (4, IQR 4-5 vs 2, IQR 2-3; P<.001), GQS (4, IQR 4-5 vs 3, IQR 2-3; P<.001), JAMA (4, IQR 3-4 vs 2, IQR 2-3; P<.001), and usefulness (8, IQR 7-9 vs 6, IQR 3-6; P<.001) of the videos from this group were significantly higher than those from non-health care professionals. Video interaction parameters, including the median number of views, views per day, likes, dislikes, comments, and VPI, demonstrated no significant difference between the 2 groups.
This study showed that YouTube videos about CD vary significantly in reliability and quality depending on their source. Increasing the production of reliable videos by health care professionals may help to improve patient education and make YouTube a more reliable resource.
YouTube 正日益成为获取医学信息的平台。然而，YouTube 上有关乳糜泻（CD）的健康相关信息的可靠性和有效性尚未得到确定。
本研究旨在分析与 CD 相关的 YouTube 视频的可靠性和有效性。
2023 年 11 月 15 日，在 YouTube 上使用关键词“乳糜泻”进行搜索。搜索结果筛选出一系列视频，然后由两名独立评估人员对其内容、来源和特定特征进行审查。评估人员使用改良的 DISCERN（mDISCERN）评分、《美国医学会杂志》（JAMA）基准标准评分、有用性评分、视频影响力指数（VPI）和全球质量量表（GQS）评分来评估这些视频的可靠性和质量。
在对 120 个初步筛选的 CD 视频进行分析时，根据预定义标准排除某些视频后，85 个视频符合纳入研究的标准。虽然医疗保健专业人员上传的视频时长明显长于另一组（P = 0.009），但得出的结论是，该组视频的 mDISCERN 中位数评分（4，四分位间距 4 - 5 对比 2，四分位间距 2 - 3；P < 0.001）、GQS（4，四分位间距 4 - 5 对比 3，四分位间距 2 - 3；P < 0.001）、JAMA（4，四分位间距 3 - 4 对比 2，四分位间距 2 - 3；P < 0.001）和有用性（8，四分位间距 7 - 9 对比 6，四分位间距 3 - 6；P < 0.001）显著高于非医疗保健专业人员上传的视频。包括观看次数中位数、每日观看次数、点赞、踩、评论和 VPI 在内的视频互动参数在两组之间没有显著差异。
本研究表明，YouTube 上关于 CD 的视频根据其来源不同，在可靠性和质量上存在显著差异。增加医疗保健专业人员制作可靠视频的数量可能有助于改善患者教育，并使 YouTube 成为更可靠的资源。
