Alfia-Burstein Shira, Oren Avi, Goldfarb Yael, Stengar-Elran Renana, Pinfold Vanessa, Roe David, Moran Galia S
The Lishma Association for the Integration and Empowerment of People Coping With Mental Health Issues, Hadera, Israel.
Psychiatric Rehabilitation Services, Central District, Ramla, Israel.
Community Ment Health J. 2025 Feb;61(2):293-299. doi: 10.1007/s10597-024-01369-1. Epub 2025 Jan 6.
A major component of recovery is the inclusion of lived experience to transform the culture of Mental Health (MH) services. In Israel lived experience has been increasingly integrated into services through peer roles. However, lived experience knowledge and expertise has not been sufficiently nor systematically integrated into the design of mental health research. This paper documents an attempt to initiate change by convening multiple stakeholders (with and without lived experience) in a specialized workshop aiming to learn and discuss the potential role of lived experience for mental health research in Israel. Participants raised ideas and core questions on how lived experience can shape research and augment mental health practices and policies. They highlighted current challenges regarding self-disclosure facing lived experience researchers, as well as challenges for developing participatory research collaborations among consumers, family members and practitioners. By bringing to the fore-front the 'insider perspective' of MH system as experienced among service users and families, we expect a development of a research culture with reduced paternalism, increased coproduction and recovery-orientation. We hope this endeavor will inspire others and help develop a lived experience expertise-based research network of interested stakeholders.
康复的一个主要组成部分是纳入生活经验,以转变心理健康(MH)服务的文化。在以色列,生活经验已通过同伴角色越来越多地融入到服务中。然而,生活经验方面的知识和专业技能尚未充分且系统地融入到心理健康研究的设计中。本文记录了一次尝试,通过在一个专门研讨会上召集多个利益相关者(有和没有生活经验的)来启动变革,旨在学习和讨论生活经验对以色列心理健康研究的潜在作用。参与者就生活经验如何塑造研究以及增强心理健康实践和政策提出了想法和核心问题。他们强调了生活经验研究者在自我披露方面面临的当前挑战,以及在消费者、家庭成员和从业者之间开展参与性研究合作所面临的挑战。通过将服务使用者和家庭中所体验到的MH系统的“内部视角”置于前沿,我们期望发展一种减少家长式作风、增加共同生产和以康复为导向的研究文化。我们希望这一努力将激励他人,并有助于建立一个由感兴趣的利益相关者组成的基于生活经验专业知识的研究网络。