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本文引用的文献

1
Decolonising global mental health: The role of Mad Studies.去殖民化全球心理健康:疯癫研究的作用。
Glob Ment Health (Camb). 2023 May 26;10:e30. doi: 10.1017/gmh.2023.21. eCollection 2023.
2
The Israeli law for the rehabilitation in the community of persons with psychiatric disabilities: Achievements and challenges.以色列精神残疾人士社区康复法:成就与挑战。
Psychiatr Rehabil J. 2023 Sep;46(3):185-195. doi: 10.1037/prj0000582.
3
Creating positive experiences of involvement in mental health research.创造积极的心理健康研究参与体验。
Lancet Psychiatry. 2023 Mar;10(3):220-227. doi: 10.1016/S2215-0366(22)00430-8. Epub 2023 Jan 22.
4
A Safe Place to Learn: Peer Research Qualitative Investigation of gameChange Virtual Reality Therapy.一个安全的学习场所:对游戏改变虚拟现实疗法的同伴研究定性调查
JMIR Serious Games. 2023 Jan 16;11:e38065. doi: 10.2196/38065.
5
UPSIDES Mental Health Peer Support in Face of the COVID-19 Pandemic: Actions and Insights.UPSIDES 心理健康同伴支持应对 COVID-19 大流行:行动与洞察。
Community Ment Health J. 2024 Jan;60(1):5-13. doi: 10.1007/s10597-022-01030-9. Epub 2022 Dec 12.
6
Psychosis Outside the Box: A User-Led Project to Amplify the Diversity and Richness of Experiences Described as Psychosis.超越常规的精神病学:一个由用户主导的项目,旨在放大被描述为精神病学的各种体验的多样性和丰富性。
Psychiatr Serv. 2023 Jul 1;74(7):760-763. doi: 10.1176/appi.ps.20220488. Epub 2022 Dec 7.
7
What Patients Prioritize for Research to Improve Their Lives and How Their Priorities Get Dismissed again.患者重视哪些能改善其生活的研究,以及他们的这些优先事项为何一再被忽视。
Int J Environ Res Public Health. 2022 Feb 9;19(4):1927. doi: 10.3390/ijerph19041927.
8
The utility of patient-reported outcome measures in mental health.患者报告结局指标在心理健康领域的效用。
World Psychiatry. 2022 Feb;21(1):56-57. doi: 10.1002/wps.20924.
9
Critical qualitative research on 'madness': knowledge making and activism among those designated 'mad'.关于“疯狂”的批判性定性研究:被认定为“疯狂”者的知识建构与行动主义
Wellcome Open Res. 2021 May 6;6:98. doi: 10.12688/wellcomeopenres.16711.1. eCollection 2021.
10
Remote care for mental health: qualitative study with service users, carers and staff during the COVID-19 pandemic.远程心理健康护理:COVID-19 大流行期间对服务使用者、护理人员和工作人员的定性研究。
BMJ Open. 2021 Apr 22;11(4):e049210. doi: 10.1136/bmjopen-2021-049210.

30岁时的康复:将生活经验专业知识融入以色列的心理健康研究

Recovery at 30: Integrating Lived Experience Expertise into Mental Health Research in Israel.

作者信息

Alfia-Burstein Shira, Oren Avi, Goldfarb Yael, Stengar-Elran Renana, Pinfold Vanessa, Roe David, Moran Galia S

机构信息

The Lishma Association for the Integration and Empowerment of People Coping With Mental Health Issues, Hadera, Israel.

Psychiatric Rehabilitation Services, Central District, Ramla, Israel.

出版信息

Community Ment Health J. 2025 Feb;61(2):293-299. doi: 10.1007/s10597-024-01369-1. Epub 2025 Jan 6.

DOI:10.1007/s10597-024-01369-1
PMID:39760963
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11772460/
Abstract

A major component of recovery is the inclusion of lived experience to transform the culture of Mental Health (MH) services. In Israel lived experience has been increasingly integrated into services through peer roles. However, lived experience knowledge and expertise has not been sufficiently nor systematically integrated into the design of mental health research. This paper documents an attempt to initiate change by convening multiple stakeholders (with and without lived experience) in a specialized workshop aiming to learn and discuss the potential role of lived experience for mental health research in Israel. Participants raised ideas and core questions on how lived experience can shape research and augment mental health practices and policies. They highlighted current challenges regarding self-disclosure facing lived experience researchers, as well as challenges for developing participatory research collaborations among consumers, family members and practitioners. By bringing to the fore-front the 'insider perspective' of MH system as experienced among service users and families, we expect a development of a research culture with reduced paternalism, increased coproduction and recovery-orientation. We hope this endeavor will inspire others and help develop a lived experience expertise-based research network of interested stakeholders.

摘要

康复的一个主要组成部分是纳入生活经验,以转变心理健康(MH)服务的文化。在以色列,生活经验已通过同伴角色越来越多地融入到服务中。然而,生活经验方面的知识和专业技能尚未充分且系统地融入到心理健康研究的设计中。本文记录了一次尝试,通过在一个专门研讨会上召集多个利益相关者(有和没有生活经验的)来启动变革,旨在学习和讨论生活经验对以色列心理健康研究的潜在作用。参与者就生活经验如何塑造研究以及增强心理健康实践和政策提出了想法和核心问题。他们强调了生活经验研究者在自我披露方面面临的当前挑战,以及在消费者、家庭成员和从业者之间开展参与性研究合作所面临的挑战。通过将服务使用者和家庭中所体验到的MH系统的“内部视角”置于前沿,我们期望发展一种减少家长式作风、增加共同生产和以康复为导向的研究文化。我们希望这一努力将激励他人,并有助于建立一个由感兴趣的利益相关者组成的基于生活经验专业知识的研究网络。