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支持获得综合服务:对中国大陆自闭症相关国家政策的范围界定审查

Supporting access to comprehensive services: A scoping review of national policies related to autism in mainland China.

作者信息

Zou Mingyang, Han Yujiao, Jin Meiyu, Xie Wei, Shang Chuang, Li Tiantian, Feng Liwen, Sun Caihong, Zhang Saisai, Wu Lijie

机构信息

Harbin Medical University, China.

The Sixth Affiliated Hospital of Harbin Medical University, China.

出版信息

Autism. 2025 Jan 6:13623613241311736. doi: 10.1177/13623613241311736.

DOI:10.1177/13623613241311736
PMID:39763095
Abstract

Policies have been found to play a crucial role in supporting the health and well-being of individuals with autism. Yet, relatively few policy reviews are related to autism, and the current level of autism-associated policies and potential gaps in comparison with the World Health Organization recommendations remain unclear. Our study reviewed autism-associated policies, described policy characteristics, and determined potential policy gaps in mainland China. We conducted a comprehensive search of autism-associated policies from 15 websites of government agencies and public institutions up to December 2022, where 81 of 2504 were retained. We found that 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking and fewer than one third of the policy documents were issued by two or more ministries. With respect to recommendations proposed by the World Health Organization (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas received extensive national attention, including leadership and governance, service delivery, and access to medicines and facility, while there was limited policy attention on the other components. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism.

摘要

政策已被发现对支持自闭症患者的健康和福祉起着至关重要的作用。然而,与自闭症相关的政策审查相对较少,与世界卫生组织的建议相比,目前自闭症相关政策的水平以及潜在差距仍不明确。我们的研究对中国大陆与自闭症相关的政策进行了审查,描述了政策特征,并确定了潜在的政策差距。我们对截至2022年12月的15个政府机构和公共机构网站上与自闭症相关的政策进行了全面搜索,从2504条政策中保留了81条。我们发现,81条政策中有42条是在2021年和2022年发布的。15个涉事部委中有12个参与了政策制定,不到三分之一的政策文件是由两个或更多部委发布的。关于世界卫生组织提出的建议(《2013-2030年综合精神卫生行动计划》和卫生系统的六大支柱),几个领域受到了国家的广泛关注,包括领导与治理、服务提供以及药品和设施的获取,而对其他组成部分的政策关注有限。尽管存在这些潜在差距,但令人鼓舞的是,国家越来越关注自闭症群体。本研究可为未来的政策制定提供依据,以便为自闭症患者提供更全面、更好的服务。

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