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州级哮喘项目的信息需求:提高可及性的建议

Information Needs of State-Level Asthma Programs: Recommendations to Increase Accessibility.

作者信息

Fox Mary, Joseph Ann, Parimi Neha, Huh Haley

机构信息

Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD 21205, USA.

Baltimore City Health Department, Baltimore, MD 21202, USA.

出版信息

Int J Environ Res Public Health. 2024 Dec 14;21(12):1670. doi: 10.3390/ijerph21121670.

Abstract

Asthma is the most common pediatric chronic disease, affecting about 5 million U.S. children. Controlling asthma requires intervention at the individual, household, and community levels. State asthma programs offer activities to support asthma control. We profiled U.S. state asthma programs through a website survey (24 CDC-funded, 10 non-CDC-funded) and then interviewed program managers about their information needs to identify ways to support their work. While CDC-funded and non-CDC-funded programs report similar goals and activities, their levels of engagement differed. Most programs rely on federal agencies or national associations for education materials. Concerns about materials were the lack of accessibility due to readability (reading level above sixth grade) and the lack of translations for culturally and linguistically diverse populations. In addition to priority needs around accessibility of materials, programs requested research to enhance their work and to support asthma management for young adults and incarcerated individuals.

摘要

哮喘是最常见的儿科慢性疾病,影响着约500万美国儿童。控制哮喘需要在个人、家庭和社区层面进行干预。各州的哮喘项目提供支持哮喘控制的活动。我们通过网站调查(24个由疾病控制与预防中心资助的项目、10个非疾病控制与预防中心资助的项目)对美国各州的哮喘项目进行了剖析,然后就项目管理人员的信息需求进行了访谈,以确定支持其工作的方法。虽然由疾病控制与预防中心资助的项目和非疾病控制与预防中心资助的项目报告了类似的目标和活动,但它们的参与程度有所不同。大多数项目依赖联邦机构或全国性协会提供教育材料。对材料的担忧在于,由于可读性(阅读水平高于六年级)导致缺乏可及性,以及缺乏针对文化和语言多样化人群的翻译。除了围绕材料可及性的优先需求外,各项目还要求开展研究,以改进其工作,并为年轻人和被监禁者的哮喘管理提供支持。

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