Selroos Olof, Kupczyk Maciej, Kuna Piotr, Łacwik Piotr, Bousquet Jean, Brennan David, Palkonen Susanna, Contreras Javier, FitzGerald Mark, Hedlin Gunilla, Johnston Sebastian L, Louis Renaud, Metcalf Leanne, Walker Samantha, Moreno-Galdó Antonio, Papadopoulos Nikolaos G, Rosado-Pinto José, Powell Pippa, Haahtela Tari
Selroos Medical Consulting (Semeco AB), Ängelholm, Sweden
Dept of Internal Medicine, Asthma and Allergy, Barlicki University Hospital, Medical University of Lodz, Lodz, Poland.
Eur Respir Rev. 2015 Sep;24(137):474-83. doi: 10.1183/16000617.00008114.
This review presents seven national asthma programmes to support the European Asthma Research and Innovation Partnership in developing strategies to reduce asthma mortality and morbidity across Europe. From published data it appears that in order to influence asthma care, national/regional asthma programmes are more effective than conventional treatment guidelines. An asthma programme should start with the universal commitments of stakeholders at all levels and the programme has to be endorsed by political and governmental bodies. When the national problems have been identified, the goals of the programme have to be clearly defined with measures to evaluate progress. An action plan has to be developed, including defined re-allocation of patients and existing resources, if necessary, between primary care and specialised healthcare units or hospital centres. Patients should be involved in guided self-management education and structured follow-up in relation to disease severity. The three evaluated programmes show that, thanks to rigorous efforts, it is possible to improve patients' quality of life and reduce hospitalisation, asthma mortality, sick leave and disability pensions. The direct and indirect costs, both for the individual patient and for society, can be significantly reduced. The results can form the basis for development of further programme activities in Europe.
本综述介绍了七个国家哮喘项目,以支持欧洲哮喘研究与创新伙伴关系制定在全欧洲降低哮喘死亡率和发病率的策略。从已发表的数据来看,为了影响哮喘护理,国家/地区哮喘项目比传统治疗指南更有效。一个哮喘项目应以各级利益相关者的普遍承诺为开端,并且该项目必须得到政治和政府机构的认可。当确定了国家层面的问题后,必须明确界定项目目标并制定评估进展的措施。必须制定一项行动计划,包括在必要时在初级保健机构与专科医疗单位或医院中心之间对患者和现有资源进行明确的重新分配。应让患者参与针对疾病严重程度的指导式自我管理教育和结构化随访。所评估的三个项目表明,通过严格努力,有可能改善患者的生活质量并减少住院率、哮喘死亡率、病假和残疾抚恤金。对于个体患者和社会而言,直接和间接成本都可大幅降低。这些结果可为欧洲进一步开展项目活动奠定基础。