Guadie Bazezew Asfaw, Belete Minyichil Birhanu, Beyene Meseret Mekuriaw, Melese Ayalew Kassie, Tessema Tarik Yenew, Workineh Yinager
Department of Nursing Bahir Dar Health Science College, Bahir Dar, Ethiopia.
Department of Pediatrics and Child Health Nursing, School of Health Sciences, College of Medicine and Health Sciences, Bahir Dar University, Bahir Dar, Ethiopia.
PLoS One. 2025 Jan 9;20(1):e0308347. doi: 10.1371/journal.pone.0308347. eCollection 2025.
Adolescents who have the human immunodeficiency virus face difficulties in their lives not just from the physical consequences of the illness but also from social stigma and discrimination. The quantitative side of this issue was the focus of earlier Ethiopian research. However, there hasn't been any prior research done extensively in Ethiopia on the real-life experiences of teenagers infected with HIV. Therefore, in order to address the real issues that these teenagers encounter, it is imperative that we investigate their lived experiences as HIV-positive adolescents.
The goal is to investigate the experiences that adolescents at Felege Hiwot Comprehensive Specialized Hospital who are infected with HIV have on a daily basis.
A phenomenological approach was conducted among thirteen purposively selected adolescents at Felege Hiwot Comprehensive Specialized Hospital, Bahir-Dar, northwest Ethiopia, from March 25 to April 30, 2023. Information saturation was used to estimate the sample size. Data was gathered through semi-structured open-ended interview guides and in-depth interview techniques. The talk was recorded using an audio recorder. The data was transcribed verbatim. The conceptual translation approach was used to translate the transcribed data from Amharic to English. For additional analysis, the translated data was entered into the Atlas.ti.8 program. To demonstrate findings, the inductive thematic analysis technique was applied using illustrative quotes. Colleague feedback, member checks, and a debriefing were used to guarantee the quality of the data.
Eleven subthemes, including main theme of "lived with burdens of immunodeficiency virus," "disclosure," "ART adherence," and "future aspiration," were used to describe the findings. The participants discussed how difficult it has been for them to deal with social, emotional, and psychological difficulties in addition to living with the HIV infection. They kept their illness a secret from others out of fear of prejudice and stigma. In conclusion, adolescents infected with the human immunodeficiency virus faced a variety of difficulties related to their mental health, relationships, emotions, and compliance. It is advised that the community get ongoing, comprehensive health education in order to prevent stigmatization and discrimination against young people who have the virus.
感染人类免疫缺陷病毒的青少年在生活中面临诸多困难，不仅源于疾病的身体后果，还来自社会耻辱和歧视。这一问题的量化方面是早期埃塞俄比亚研究的重点。然而，此前在埃塞俄比亚尚未对感染艾滋病毒青少年的现实生活经历进行过广泛研究。因此，为了解决这些青少年所面临的实际问题，我们必须调查他们作为艾滋病毒阳性青少年的生活经历。
旨在调查费莱格·希沃特综合专科医院感染艾滋病毒的青少年的日常经历。
2023年3月25日至4月30日，在埃塞俄比亚西北部巴赫达尔的费莱格·希沃特综合专科医院，对13名经过有目的选择的青少年采用现象学方法进行研究。采用信息饱和法估计样本量。通过半结构化开放式访谈指南和深入访谈技术收集数据。谈话内容用录音机记录。数据逐字转录。采用概念翻译法将转录数据从阿姆哈拉语翻译成英语。为进行进一步分析，将翻译后的数据输入到Atlas.ti.8程序中。为展示研究结果，采用归纳主题分析技术并引用说明性引语。通过同事反馈、成员核对和汇报来保证数据质量。
包括“背负免疫缺陷病毒负担生活”“披露病情”“坚持抗逆转录病毒治疗”和“未来期望”等主题在内的11个子主题被用于描述研究结果。参与者讨论了除感染艾滋病毒外，他们在应对社会、情感和心理困难方面有多艰难。出于对偏见和耻辱的恐惧，他们对他人隐瞒自己的病情。总之，感染人类免疫缺陷病毒的青少年在心理健康、人际关系、情绪和依从性方面面临各种困难。建议社区持续开展全面的健康教育，以防止对感染该病毒的年轻人产生耻辱和歧视。
