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先天性多发性关节挛缩症。一项长期随访研究。

Arthrogryposis multiplex congenita. A long-term follow-up study.

作者信息

Carlson W O, Speck G J, Vicari V, Wenger D R

出版信息

Clin Orthop Relat Res. 1985 Apr(194):115-23.

PMID:3978904
Abstract

Most patients with arthrogryposis function well in adult life; however, many remain partially dependent upon others (parents, relatives, government subsidy). This dependency was more closely related to personality, education, and overall coping skills than to degree of physical deformity. Properly sequenced corrective surgical procedures are required to maximize musculoskeletal function. In addition to appropriate surgical correction, good family support, a proper educational environment, and promotion of independence at an early age are required to achieve maximal adult function.

摘要

大多数先天性多发性关节挛缩症患者在成年后功能良好;然而,许多人仍然部分依赖他人(父母、亲属、政府补贴)。这种依赖与个性、教育程度和整体应对能力的关系比与身体畸形程度的关系更为密切。需要进行适当排序的矫正手术程序,以最大限度地提高肌肉骨骼功能。除了适当的手术矫正外,还需要良好的家庭支持、适当的教育环境以及在幼年时促进独立性,以实现最大程度的成年功能。

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