Hansson Malin, Pivodic Aldina, Löfqvist Chatarina, Sävman Karin, Hallberg Boubou, Ley David, Morsing Eva, Lundgren Pia, Gyllén Jenny, Pfeiffer-Mosesson Carola, Hellström Ann
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Region Västra Götaland, Research and Development Primary Healthcare, Gothenburg, Sweden.
Acta Paediatr. 2025 Jun;114(6):1352-1361. doi: 10.1111/apa.17577. Epub 2025 Jan 10.
To analyse the challenges faced by parents of extremely preterm infants born before 24 weeks of gestation and the potential buffering effect of perceived resources on the family's health continuum.
The qualitative data were obtained from 70 parents of 70 infants born before 24 weeks of gestation, through open-ended questions in a survey. An inductive content analysis was conducted to identify themes and patterns in the parents' experiences. To enhance the understanding of the findings, salutogenic theory was incorporated to contextualise the emerging patterns of resources and deficits.
Parents described the neonatal care as exemplary. However, the integrated results showed that parents reported profound difficulties characterised as 'living in a bubble' with comprehensive neonatal care and varied access to support and participation. In addition, the parents had to manage a preterm born child with medical complexities and encountered significant barriers between care levels.
The findings highlight the need to improve support systems and address challenges for families of preterm born children. Enhancing collaboration between healthcare providers and families, identifying and overcoming barriers during care, and providing comprehensive support services are crucial. Addressing the parents' experienced deficits may mitigate potential adverse effects on family health outcomes.
分析妊娠24周前出生的极早产儿父母所面临的挑战，以及感知资源对家庭健康连续体的潜在缓冲作用。
通过调查中的开放式问题，从70名妊娠24周前出生的婴儿的70名父母那里获取定性数据。进行归纳性内容分析，以确定父母经历中的主题和模式。为了加深对研究结果的理解，引入健康促进理论，将资源和不足的新出现模式置于背景中。
父母将新生儿护理描述为堪称典范。然而，综合结果显示，父母报告了深刻的困难，其特征是在全面的新生儿护理以及获得支持和参与的机会各不相同的情况下“生活在泡沫中”。此外，父母必须照顾患有复杂医疗问题的早产儿童，并在护理级别之间遇到重大障碍。
研究结果强调需要改善支持系统，并应对早产儿童家庭面临的挑战。加强医疗服务提供者与家庭之间的合作、识别并克服护理期间的障碍以及提供全面的支持服务至关重要。解决父母所经历的不足可能会减轻对家庭健康结果的潜在不利影响。
